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  • COVID19 Family Resources | -scdaami-

    Additional resources to support your needs during the COVID-19 pandemic Food Mental Health Internet Talking With Kids Education Ways to Connect 2-1-1 Job Info Locate various community resources by zip code https://navigator.familydoctor.org/ ​ ​ ​ ​ ​ ​ ​ ​ ​ ​ Food Locate food banks by zip code https://www.feedingamerica.org/find-your-local-foodbank Several school districts are offering “grab and go” food pick up for students during the COVID-19 outbreak. These organizations are assisting as well: Gleaners Food Bank Forgotten Harvest Yad Ezra Lighthouse Food Pantry City of Detroit Food Pickup ​ Mental Health 24/7 365 Disaster Distress Hotline to assist with emotional distress due to pandemic Free online COVID-19 support group Coping With Coronavirus Anxiety - from Harvard Health Reading Be The Match® is now offering free counseling services to sickle cell warriors and their loved ones. One of their licensed social workers can provide you with one-on-one support for personal and emotional issues. Request a connection today. ​ ​ Internet & Device Access to provide low cost telephone and broadband internet service FCC program for eligible households (Michigan is a participating state) Some internet providers are offering free services to low-income families and households with students. Free Comcast Xfinity internet: Comcast Xfinity is currently offering its Internet Essentials program free for two months to new customers. The internet provider is also automatically increasing speeds for all Internet Essentials customers. Comcast Xfinity Wi-Fi hotspots are also open and free to use by anyone. Free internet for students from Charter Spectrum: Households with students K–12 or university students can sign up for a new Charter Spectrum internet account to get the first two months of internet with speeds up to 100 Mbps for free. Installation fees will be waived for those who qualify for the offer. Call to enroll. Spectrum Wi-Fi hotspots are also currently open and free to use. 1-844-488-8395 Free internet for students from Altice: Altice internet providers Suddenlink and Optimum are offering 60 days of free internet service for households with K–12 or college students. Internet speeds are up to 30 Mbps if you do not already have access to a home internet plan. To sign up, call if you live in an area with Optimum internet service, or call if you live in an area with Suddenlink internet service. 1-866-200-9522 1-888-633-0030 Free low-income internet from Cox: Until May 12, 2020, Cox is offering the first month of its low-income internet program, , for free. The internet service is also providing free phone and remote desktop support for technical support during that time. Connect2Compete AT&T: https://www.att.com/help/covid-19/ Talking with your children about COVID-19 National Association of School Psychologists Talking to Children About COVID-19: : Substance Abuse & Mental Health Services Administration Coping with Stress During Infectious Disease Outbreaks : CDC Talking with Children about Coronavirus : CDC Helping Children Cope with Emergencies : PBS Kids How to Talk to Your Kids About Coronavirus Should children be gathering while school is not in session? : Discourage children and teens from gathering in other public places while school is dismissed to help slow the spread of COVID-19 in the community CDC Recommendation ? Fatherly Magazine Coronavirus is Here. Should Kids Still Have Playdates ​ Educational Websites and Apps Guidance and a variety of good online resources are available on the website. Common Sense Media ​ All Subjects ABC Mouse (Free 30 day trial) Khan Academy Khan Academy Kids Wonderopolis Parent Toolkit Literacy Scholastic Learn at Home Starfall (free audio stories for kids) Audible Math Code.org - Free coding courses for all grades Tynker - puzzles that use mathematical thinking Solve Me Puzzles Math Games PBS Kids Science & Social Studies Mystery Doug National Geographic Kids Science Journal for Kids ​ Enrichment Activities ​ Fun Games PBS Kids Typing.com Movement & Mindfulness Headspace Go Noodle Mindfulness Moments Virtual Tours Museum Virtual Tours NASA Images and Video Library Cranbrook Art Museum virtual tour ​ Ways to connect (Free 90 day trial) Adobe Connect Facetime Skype Google Hangouts ​ ​ ​ United Way 2-1-1 United Way for Southeast Michigan's 2-1-1 service provides referrals to programs in Wayne, Oakland, Macomb, Washtenaw, Monroe and Lapeer counties, connecting users with more than 30,000 service providers throughout the state. You can get information online at , or by dialing 2-1-1 (or ). United Way 2-1-1 1-800-552-1183 ​ ​ Returning to Work Michigan information for employers and employees Michigan guidance for manufacturing workers returning to work from SCDAA for physicians to provide patients and caregivers Template letters ​ Back to the top Back to the top Back to the top COVID-19 Information From Michigan Health Departments ​ Berrien County here Genesee County here Ingham County here ​ Kent County here ​ Lenawee County here Macomb County here Michigan Department of Health & Human Services here Oakland County here Saginaw County here Washtenaw County here Wayne County here

  • about

    our history The History of the Sickle Cell Disease Association of America – Michigan Chapter The Passion Continues ​ OUR MISSION​ To maximize the life potential of individuals living with sickle cell disease To enable individuals with sickle cell trait to make informed decisions with respect to family planning. To provide education and testing for the general public ​ when renowned pediatrician and sickle cell expert founded the Sickle Cell Detection and Information Program. The agency’s creation was just one achievement on Dr. Whitten’s lengthy list of accomplishments. SCDAA-MI’s story began in August of 1971 at Kirwood Hospital Dr. Charles F. Whitten In 1960, he and Dr. Charles Wright founded the African Medical Education Fund. Nearly a decade later, he instituted Wayne State University’s Post Baccalaureate Enrichment Program after noticing that black students often needed additional preparation for medical school. Then in 1971 he formed the “Sickle Cell Center,” and along with Dorothy Boswell formed the National Association for Sickle Cell Disease (now the Sickle Cell Disease Association of America) that same year. He led the national organization for nearly 20 years. In 1956, he’d been selected as clinical director of pediatrics at Detroit Receiving Hospital – the first African American in the role. of improving the lives of individuals with sickle cell disease. Meanwhile, it has also grown in scope in response to evolving medical and social demands. Still situated on Detroit’s northwest side, in the original building of its founding, the agency completed purchase of its interconnected stretch of buildings in 1990. The structure contains 14 offices, a laboratory where free trait and disease screening is conducted, a conference room, and an educational wing. There is also ample outdoor space for client activities. SCDAA-MI is one of the only community-based organizations in the country responsible for overseeing a state-wide sickle cell program. Over its 48 year history, the SCDAA-MI has held fast to its mission – stepped away from her role as Director of the Comprehensive Sickle Cell at Clinic Children’s Hospital of Michigan and assumed leadership of SCDAA-MI. Currently its CEO & Medical Director, she continues to steer the agency and manages to carve out time to care for newly-diagnosed infants at CHM as well. After Dr. Whitten passed away in 2008, his daughter Wanda Whitten-Shurney, M.D. – a beloved pediatrician as well ​ whose children have received their out-patient care from her during her 30-year career. She has worked relentlessly to help kids and their families manage sickle cell, emphasizing education and coping strategies to help individuals enjoy healthier, more active lives. She also a member of the . Her passion for sickle cell patients and the people who love them continues. Dr. Shurney has been a familiar and caring face to hundreds of families National Heart, Lung and Blood Institute Sickle Cell Advisory Committee LEARN MORE ​ ​ Dr. Charles F. Whitten Black History Month Sickle Cell Pioneers Dr. Whitten's papers acquired by NIH library Dr. Wanda Whitten-Shurney Read more about Dr. Shurney in our media section

  • Media | -scdaami-

    media Keep up with SCDAA-MI news, articles and information from a variety of outlets on issues affecting sickle cell, and videos and webinars to keep you up-to-date about what's happening in the #sicklecell community. ​ SCDAA-MI OUT & ABOUT SCDAA-MI World Sickle Cell Day press release SCDAA-MI ANNOUNCES SAFE(R) INITIATIVE TO IMPROVE EMERGENCY SICKLE CELL CARE Effort aims to assist medical community in proper treatment of long-misunderstood disease ​ February 26, 2020 Read more ​ provides medical professionals with quick access to an online portal at that provides clinical practice guidelines for sickle cell established by the National Institutes of Health, sickle cell-specific opioid guidance from the Centers for Disease Control, as well as best practices and recommendations from the American Society of Hematology and other leading experts in sickle cell treatment. SAFE(R) SCDAAMI.org/SickleCell911 NHLBI Speaker "Thank you for having me alongside these devoted advocates as a panelist for the “What is a Meaningful Cure?” panel discussion hosted by Dr. . Thanks for the pic!! — with , and at ." National Heart, Lung, and Blood Institute (NHLBI) Wanda Whitten-Shurney #CureSCI #sicklecell Teonna Woolford Velvet Brown-Watts André Marcel Harris Cassandra Trimnell Hilton Washington DC/Rockville Hotel and Executive Meeting Center NEWS FROM AROUND THE COMMUNITY Toledo's Promedica Hospital has added an adult sickle cell clinic, the first of its kind in northwest Toledo. - WATCH & READ Get the clinic's info here Could gene therapy cure sickle cell anemia? - WATCH FDA approves first targeted therapy to treat patients with painful complication of sickle cell disease - READ FDA Approves Oxbryta™ (Voxelotor), the First Medicine Specifically Targeting the Root Cause of Sickle Cell Disease - READ Sickle Cell Disease Treatment Has Oklahoma Roots - READ Patient & caregiver focused videos All Categories Play Video Play Video 10:35 Sickle Cell Disease: a battle for equality, justice and respect | Ahmar Zaidi | TEDxDetroit What led a 46 year old Haitian artist to being kicked out of the hospital in the dead of winter? What led him to joblessness and homelessness? Part of the answer was in his blood...but most of the answer is us. Dr. Ahmar Zaidi is a pediatric hematologist who focuses on the care of people with sickle cell disease. He works at the Children’s Hospital of Michigan and is involved in research looking at pain in sickle cell disease patients. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx Play Video Play Video 03:54 Hour Detroit’s Excellence in Care Award Sharada Sarnaik, M.D., Pediatric Hematologist/Oncologists at Children’s Hospital of Michigan presented Hour Detroit’s Excellence in Care Award Play Video Play Video 07:12 SCDAAMI Questions about Hydroxyurea OUR THEME: Together we can make a difference and "break the sickle cycle" OUR MISSION To maximize the life potential of individuals living with sickle cell disease To enable individuals with sickle cell trait to make informed decisions with respect to family planning. To provide education and testing for the general public Play Video Play Video 10:16 World Sickle Cell Day | American Black Journal Clip Air date: 6/19/16. Three women on the front lines in the battle against sickle cell disease: Wayne County Prosecutor Kym Worthy, who is Board Chair of the Sickle Cell Disease Association of America’s Michigan chapter; Dr. Wanda Whitten-Shurney, a pediatrician at Children’s Hospital of Michigan; and Anastasia Worthy, Youth Ambassador of the Michigan Chapter of the Sickle Cell Disease Association of America. Episode 4437/Segment 1. Play Video Play Video 02:00 2018 Access to Care Summit Educating and Empowering Sickle Cell Patients 2018 Access to Care Summit: Educating and Empowering Sickle Cell Patients. Original published link: https://www.youtube.com/watch?v=cEHsyeTbYT8&t=9s Play Video Play Video 00:31 Annual SCD Therapeutics Conference Experience Wanda Whitten Shurney, M D Wanda Whitten-Shurney, M.D., the CEO and medical director of SCDAA – Michigan Chapter, explains the value that the annual Sickle Cell Disease Therapeutics Conference offers to the SCD community in this short video. To learn more, visit scdconference.com. Original published link: https://www.youtube.com/watch?v=IYP1YkA0W3A Play Video Play Video 05:48 Sickle cell disease: Why is it hard to talk about our pain? BBC Stories Sickle cell disease is a serious and lifelong health condition that predominantly affects people from African or Caribbean backgrounds. Symptoms include bouts of pain, strokes, organ failure, and complications that can result in reduced life expectancy. Some consider it a 'silent illness' as those who have the condition rarely speak about it or the pain that they live with. We speak to 25 year-old Chris who lives with the disease and started his own initiative that aims to create conversation about the condition. Produced by: Kesewaa Browne Filmed and edited by: James Stewart Animation: Gerard Groves Commissioning Editor: Kimberley Rowell #sicklecell #sickle #bbc We are BBC Stories, a group of journalists making films, long and short, with the younger audience (18-24) in mind. The idea is to tackle issues which concern and impact this group of people. So think about anything from race and identity to mental health, money and much more. Play Video Play Video 05:07 Prodigy Talks With Real Health About His Life With Sickle Cell Anemia Hip-Hop Star Prodigy talks with Real Health editor in chief Kate Ferguson about his life with sickle cell anemia.

  • Services Overview | -scdaami-

    our services For more information: Detroit Main Line: (313) 864-4406 Children's Hospital SC Clinic: (313) 745-5613 Sickle Cell Trait Counseling: (313) 595-0280 School/Job Assistance: (313) 595-0541 Email info@scdaami.org ​ Contact our nearest satellite office: Adult Clinic Caseworker at DMC :(313) 864-4406 Benton Harbor/Kalamazoo Area: (313) 505-4081 Grand Rapids/Muskegon Area: (616) 788-9816 Jackson/Lansing Area: (800) 842-0973 Saginaw/Flint Area: (989) 372-0256 SCDAA-MI provides a range of services to individuals with sickle cell and their families. This includes counseling, support groups, referrals for financial and medical help, college and employment assistance, sending children to summer camp each year. The agency also coordinates newborn screening for all babies born in Michigan. WHAT WE DO HERE TO HELP Services We Provide Do you have medical insurance, primary care, a hematologist? Do you need accommodations at school/work? Let us help you manage your life with sickle cell. Read More PARTNER RESOURCES Community Connections We've compiled a handy list of helpful partner resources you can use to help meet basic and emergency needs for yourself and/or your family. Read More COVID-19 INFORMATION What You Should Know Individuals with sickle cell run a higher risk of complications if they contract COVID-19. Get SCD-specific info and guidelines to help stay safe. Read More

  • Symptoms and Complications | -scdaami-

    symptoms& complications Info You Should Know: Symptoms and Complications of Sickle Cell Disease (Although the language here is directed to parents, this list applies to both children and adults with sickle cell. When in doubt, please contact your medical provider or go to the hospital.) NIH NHLBI g uidelines for treating complications ​ ​ Anemia Your baby may have this condition if he/she lacks the number of healthy blood cells required to carry sufficient oxygen to the rest of the body. Some of the most common symptoms include paleness, low energy, breathing problems, and slower growth. ​ Treatment: The doctor will consider the severity of the symptoms to suggest a treatment plan, but they may rely on antibiotics and blood transfusion to treat the condition. ​ Acute Chest Syndrome It could be an extremely painful and serious situation because it restricts blood flow to the lungs. Some common signs and symptoms include chest pain, breathing problems, and fever. Treatment: The doctor may recommend treatment with blood transfusions, antibiotic medicine, pain medicine, and oxygen to help improve breathing. ​ Pain Pain is common and happens when sickled cells restrict blood flow. Pain can be anywhere in the body – it can be in organs and joints as well. The pain may continue for a few hours or extend to days and even weeks. It is important to give your child plenty of fluids, maintain temperature, and keep them from high altitudes to limit pain episodes. Treatment: Some of the most common treatment options include heating pads, prescription pain medicine, OTC pain relievers like ibuprofen, and hydroxyurea to help produce a specific type of hemoglobin. Extended pain requires hospitalization and narcotic medications. ​ Hand-Foot Syndrome A child may experience pain, coldness, or swelling in the feet and hands when the sickle cells affect the blood supply to these limbs. Treatment: The doctor may rely on certain pain-relieving medicine to treat the symptoms. Giving your child plenty of fluids may also help. ​ Splenic Crisis Sometimes, sickled cells accumulate in the spleen and clog it. This leads to swelling that prevents the spleen from filtering blood in the body. Specific signs include weakness, pain on the left side of the belly, and a rapid heart rate. Treatment: The usual treatment option is blood transfusion. The doctor may also consider removing the spleen iif splenic crisis becomes a regular issue. ​ Infection Your child may have to fight with several infections including the infection of the lining of the brain and lung infection. Signs and symptoms include breathing problems, fever, coughing, headaches, and pain in the bones. An oral temperature over 100.3 requires a trip to the emergency room to help prevent bacterial sepsis. Treatment: It is important to prevent an infection from happening by staying up to date on vaccinations. If your child gets an infection, your doctor may recommend some antibiotics to clear the infection. Taking antibiotics regularly may help prevent infections when your baby is between 2 months and 5 years of age. ​ Stroke Those altered red blood cells may restrict blood flow to the brain, which sometimes leads to a stroke. The most common symptoms include weakness on one side of the body, severe headache, and changes in speech, alertness, hearing, or vision. Treatment: Your child's healthcare provider will first notice these symptoms and then ask for an ultrasound, called Doppler ultrasound, to determine your child's risk for stroke. ​ Vision Loss Blindness and other vision problems may happen when these cells block blood supply to your child's eyes. Sometimes, the cells block the blood flow to a specific part of the brain that leads to vision loss. ​ Treatment: A regular eye exam with an ophthalmologist is necessary to avoid such issues, but your doctor may also recommend additional eye treatment to prevent further damage. ​ ​ More on major complications and their treatments from the CDC ​

  • Conditions Overview | -scdaami-

    sickle cell conditions Sickle cell disease is the most common heritable blood disorder in the U.S. It affects 100,00 people, most of them living healthier and longer lives than would've been possible one or two generations ago. The disease is chronic, complex and challenging. But at the SCDAA-MI, we are resilient and resourceful - committed to improving lives. We're here to win. SCROLL DISEASE & TRAIT What & How Learn about the history, transmission and variability of sickle cell disease, and what we're discovering about trait. Read More PATIENT SUPPORT Find Answers You have questions, we're here to help you get answers. Cut through the internet chatter with credible tips, tools and insights. Read More TREATMENTS Is there a cure? A universal cure isn't here yet, but there are disease-altering treatments for children & adults that you should know about. Read More SAFE(R) Stay SAFER in the ER Learn more about our SAFE(R) initiative and the evidence-based guidelines in place for emergency sickle cell care. Read More

  • About Us Overview | -scdaami-

    about us The Sickle Cell Disease Association of America - Michigan Chapter has been a leader in the sickle cell community since 1971. We are committed to improving the lives of people with sickle cell by keeping our mission at the center of everything we do. ​ OUR HISTORY SICKLE CELL CENTER Our success all started with the vision of Dr. Charles F. Whitten. His daughter Dr. Wanda Whitten-Shurney continues the work. Read More > OUR IMPACT EVERYBODY COUNTS Numbers, numbers, numbers. But here at SCDAA-MI, every statistic represents a real person we fight for every day. Read More > OUR BOARD LEADERSHIP MATTERS Our board members provide mission and operational oversight with passion, dedication, and expertise. Read More > OUR STAFF 200 YEARS The SCDAA-MI staff brings more than 200 years of experience to its mission of changing the world of sickle cell. Read More >

  • Sickle Cell Detroit Michigan Introduction - SCDAAMI

    SICKLE CELL DISEASE Association of America Michigan Chapter (SCDAAMI) Enter Site Contact Us Donate

  • Ways 2Give | -scdaami-

    WAYS TO GIVE Donate online here Host a Facebook fundraiser: Birthdays, anniversaries, holidays, Mondays - any day is a good day to around our cause. rally your friends Facebook Amazon: By selecting the Sickle Cell Disease Association of America - Michigan Chapter as your charitable recipient, Amazon will donate .5% of every eligible purchase to SCDAA-MI. All you have to do is shop. Amazon handles the rest. Give while you shop, through Amazon Smile. Text to give: $5 will be added to your phone bill. (Message and data rates apply.) Text FIVE to 52000. Kroger: Enter SICKLE CELL DISEASE ASSOICATION OF AMERICA MI CHPT or 91452. Individual purchases will begin counting towards your organization within 7-10 days of registering the individual rewards cards on-line. Every time you shop for groceries and swipe your card, SCDAA-MI automatically starts earning a rebate. Kroger limits your quarterly household contribution to $300. Register your Kroger Rewards Card online at Kroger.com/communityrewards (Sorry, but that is how it's spelled on that site!) By check or money order, mail to: SCDAAMI, 18516 James Couzens Fwy, Detroit MI 48235 CORPORATE PARTNERSHIPS Donating to SCDAA-MI benefits the thousands of individuals who depend on our education, advocacy and awareness efforts. It also benefits your corporate responsibility goals. We’re currently recruiting sponsors at the Charles H. Wright Museum of African History from 9 a.m. - noon. for our on Sept. 19 2020 Sickle Cell Matters Virtual Walk ​ , Co-host of "Sunday Morning Inspiration" on MIX 92.3 FM and Professor of English Literature at the University of Michigan-Dearborn. Our Honorary Chair is Deborah Smith Pollard , Pediatric Oncologist/Hematologist, Comprehensive Sickle Cell Clinic at Children’s Hospital of Michigan, and known to many as "Dr. Z". Our Honorary Co-Chair for the event is Dr. Ahmar Zaidi Many of our 2020 Sickle Cell Matters Virtual Walk sponsorships provide year-round engagement opportunities for companies and employees. for more information. Click here ​ We're also looking for community partners to serve on our Sickle Cell Matters Walk Host Committee. for information. Click here ​ For more information, contact Stefanie Worth, Director of Operations & Outreach at 313-864.4406, ext. 111. ​ WHY DONATE? With nearly 3,000 people in Michigan living with sickle cell and approximately 1,600 of those people living in the metro Detroit area, individuals, their families, and the community at large. our programs and services impact Sickle cell affects three times as many people as cystic fibrosis in the U.S., yet receives approximately one-third the funding. Your support helps provide year-round education for physicians, patients and caregivers; appropriate medical care, trait testing campaigns, self-sustainability work, and more. Modern medicine has the capacity to help people with sickle cell thrive. Individuals living with the condition want improved quality of life and it’s our mission to make that happen. ways 2give QUICK ACCESS MENU DONATE FACEBOOK AMAZON KROGER SPONSORSHIPS QUESTIONS?

  • About Us | -scdaami-

    about us The Sickle Cell Disease Association of America - Michigan Chapter has been a leader in the sickle cell community since 1971. We are committed to improving the lives of people with sickle cell by keeping our mission at the center of everything we do. ​ OUR HISTORY SICKLE CELL CENTER Our success all started with the vision of Dr. Charles F. Whitten. His daughter Dr. Wanda Whitten-Shurney continues the work. Read More > OUR IMPACT EVERYBODY COUNTS Numbers, numbers, numbers. But here at SCDAA-MI, every statistic represents a real person we fight for every day. Read More > OUR BOARD LEADERSHIP MATTERS Our board members provide mission and operational oversight with passion, dedication, and expertise. Read More > OUR STAFF 200 YEARS The SCDAA-MI staff brings more than 200 years of experience to its mission of changing the world of sickle cell. Read More >

Sickle Cell Disease Association of America -
Michigan Chapter, Inc.

18516 James Couzens Fwy, Detroit, MI 48235

(313) 864-4406 OR (800) 842-0973

info@scdaami.org

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Originators of the SAFER Initiative (c) 2020

© 2020 Sickle Cell Disease Association of America - Michigan Chapter, Inc. All rights reserved.

SCDAA-MI is a qualified 501(c)(3) tax-exempt organization. Tax ID Number: 38-1963640.