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  • Awareness Campaign Launch | -scdaami-

    campaign awareness launch 2020 Photo Gallery 2019 Photo Gallery 2018 Photo Gallery

  • 2019 Gallery | -scdaami-

    photo galleries 2019 event gallery 2018 Photo Gallery 2020 Photo Gallery Awareness Campaign Launch Celebrating 43 Years of Helping to Break the Sickle Cycle! The Cynthia Coles Circle 2019 Annual Sickle Cell Benefit Luncheon Saturday, May 18,2019 Guest Speaker Lt. Governor Garlin Gilchrist III Celebrating World Sickle Cell Day June 19, 2019 Thank you to all of our supporters! The Sickle Strong Empowerment Circle presents its 1st Annual Balloon Release June 19, 2019 World Sickle Cell Day Belle Isle Park Detroit, Michigan

  • SickleCell911 | -scdaami-

    SICKLE CELL 911: FAST ACCESS TO GUIDELINES & BETTER CARE Empowering medical professionals to implement evidence-based sickle cell action. Amplifying the patient's voice in care. " Only about 1 in 4 patients with sickle cell disease receive the standard of care described in current guidelines, and many studies have shown that patients do not receive treatment for their pain as soon as, or in appropriate doses as, other patients." - HHS Office of Minority Health PROVIDER INFO SCDAA HEALTH ALERT - AND SICKLE CELL DISEASE: An Outline to Decrease Burden and Minimize Morbidity COVID-19 PARTNER WITH SAFER COVID REGISTRY ASH COVID FAQs OPIOIDS & SCD NIH GUIDELINES COMPLICATIONS ASH POCKET GUIDES ABOUT SAFE(R) SCD EDUCATION IF A PATIENT GIVES YOU THIS CARD, PLEASE CLICK THE IMAGE FOR NIH GUIDELINES! PLEASE TRIAGE AS ESI 2 PER NIH AND AHRQ "It is not possible to manage pain at triage for patients with renal colic, cancer, or sickle cell crisis. whenever possible." - AHRQ, Emergency Severity Index (ESI) Implementation Handbook These patients should be triaged as ESI level 2 and rapid placement should be facilitated (see page 26) Web site PDF NIH SICKLE CELL PAIN ALGORITHM HOW TO CONDUCT A SICKLE CELL ASSESSMENT These videos from Duke University's School of Nursing demonstrate how to conduct an assessment for a sickle cell patient's vaso-occlusive crisis (6 mins) and a patient with a high number of ED visits who might face perceptions of opioid addiction or drug-seeking behavior (3 mins). ABOUT THE SAFE(R) INITIATIVE SAFE(R) stems from the sad and dangerous reality that many individuals with sickle cell opt to "wait out" an acute episode as long as possible rather than endure a traumatizing trip to the ED where they're likely to be stigmatized and/or undertreated. This treatment time lost equates to eventual organ failure or other tragic complications. We're asking the medical community to partner with us in assuring patients that they'll be SAFE(R) in your facility because you'll adhere to CDC and NIH guidelines in their care. ​ a compilation of NIH guides specific to SAFE(R). Access/download ​ Printable patient . SCD911 SAFE(R) Card ​ Learn more about the . SAFE(R) Initiative CDC CLARIFICATION ON OPIOIDS FOR SCD Read the clarification letter from CDC to ASH . online ​ Read the CDC's statement against misapplication of the guideline here. BACK TO THE TOP NIH EVIDENCE-BASED MANAGEMENT OF SICKLE CELL DISEASE NIH full recommendations Click the image at left for a PDF of the full 161-page NIH recommendations. will take you directly to the full document at NIH's site. This link NIH Quick Guide to Recommendations "The purpose of this Guide to Recommendations is to provide clinicians with a digital resource of the treatment recommendations extracted from the full report. For more information, please refer to the full report. . . ." ​ Click the image at right for a pdf of the 48-page Quick Guide. will take you directly to the Quick Guide document at NIH's site. This link NIH GUIDELINES: ACUTE CARE BREAKOUT For ease-of-access, this section contains a breakout of individual acute complications of sickle cell with links to corresponding PDFs from the Quick Guide and the full recommendations. Remember, there are no labs that can indicate or confirm a ! What does the patient report? patient's level of pain Acute Chest Syndrome: Quick Full ​ Acute Stroke: Quick Full ​ Anemia: Quick Full ​ Fever: Quick Full ​ Hepatobiliary: Quick Full ​ Multi-System Organ Failure: Quick Full ​ Ocular Conditions: Quick Full ​ Priapism: Quick Full ​ Renal Failure: Quick Full ​ Splenic Sequestration: Quick Full ​ Vaso-occlusive crisis/pain episode: Quick Full ​ ASH POCKET GUIDES FOR ACUTE AND NON-ACUTE CARE MANAGEMENT ASH POCKET GUIDE - MANAGEMENT OF ACUTE COMPLICATIONS OF SICKLE CELL Click the image to access a PDF of ASH's Management of Acute Complications of Sickle Cell Disease pocket guide. Presented by ASH in 2014, adapted from the National Heart, Lung, and Blood Institute's Evidence Based Management of Sickle Cell Disease: Expert Panel Report, 2014. ( to go directly to ASH's web site for links to all its sickle cell pocket guides.) Click here ACCESS ALL ASH POCKET GUIDES FOR MANAGING SICKLE CELL Click to go directly to ASH's web site for links to all the sickle cell pocket guides. here The following links will take you to individual PDFs for download. in Sickle Cell Disease: Screening and Management Cardiopulmonary and Kidney Disease This pocket guide includes key recommendations from the American Society of Hematology 2019 guidelines for sickle cell disease: cardiopulmonary and kidney disease, available soon in Blood Advances. ​ Presented by ASH in 2014, adapted from the National Heart, Lung, and Blood Institute's Evidence Based Management of Sickle Cell Disease: Expert Panel Report, 2014 of Sickle Cell Disease Health Maintenance and Management of Chronic Complications ​ Presented by ASH in 2014, adapted from the National Heart, Lung, and Blood Institute's Evidence Based Management of Sickle Cell Disease: Expert Panel Report, 2014 for the Treatment of Sickle Cell Disease Hydroxyurea and Transfusion Therapy ​ Download the apps: For iOS For Android Web of the apps version BACK TO THE TOP SOURCES: https://www.minorityhealth.hhs.gov/sicklecell/, https://www.nhlbi.nih.gov/health-topics/evidence-based-management-sickle-cell-disease, https://www.nhlbi.nih.gov/sites/default/files/media/docs/Evd-Bsd_SickleCellDis_Rep2014.pdf, https://www.hematology.org/Clinicians/Guidelines-Quality/Quick-Reference.aspx, https://sickleemergency.duke.edu/educational-resources/videos, https://www.ahrq.gov/sites/default/files/wysiwyg/professionals/systems/hospital/esi/esihandbk.pdf

  • SCDAA-MI E-Newsletters | -scdaami-

    Catch up on news and information from the SCDAA-MI E- newsletters Read the latest news SUBSCRIBE TO OUR E-NEWS September 2020 Special Edition Read web version ​ Download PDF World Sickle Cell Day Alert Read web version ​ Download PDF January 2020 (Winter) Read web version ​ Download PDF Summer 2020 (August) Read web version ​ Download PDF Spring 2020 (April) Read web version ​ Download PDF November 2019 Read web version ​ Download PDF

  • Contact Us | -scdaami-

    contact us Volunteer Photo Release Client Feedback ​ WE'RE NOW WORKING REMOTELY TO HELP PROTECT OUR COMMUNITY. PLEASE CALL FOR ASSISTANCE. THANK YOU! If you need assistance, have questions, or would like to partner in SCDAA-MI's work,our staff will be happy to help. Appointments and walk-ins are welcome for sickle cell disease and trait testing. We also offer non-directed genetic counseling. Contact Us First Name Last Name Email Phone Type your message here... Thanks for reaching out! Submit Email: info@scdaami.org Detroit/SE Mich: 313-864-4406 or 800-842-0973 Children's Hospital SC Clinic: 313-745-5613 Sickle Cell Trait Counseling: 313-451-0014 School/Job Assistance: 734-494-2119 ​ Our address: 18516 James Couzens Fwy Detroit, MI 48235 ​ ​ Hours of Operation: 9 a.m. - 5 p.m. Mondays - Wednesdays, and Fridays 9 a.m. - 7 p.m. Thursdays ​ You can also contact our nearest satellite office: Adult Clinic Caseworker at DMC : (313) 864-4406 Benton Harbor/Kalamazoo Area: (313) 505-4081 Grand Rapids/Muskegon Area: (616) 426-9259 Jackson/Lansing Area: (800) 842-0973 Saginaw/Flint Area: (989) 372-0256 Photo/Video Release The Sickle Cell Disease Association of America - Michigan Chapter, Inc. frequently takes photos and video at its events and activities and ask that participants sign a waiver allowing the use of their likeness in publications, our web site, social media sites, and other public forms. You will only need to complete this form once. If at any time you wish to revoke use of your likeness in the future, you must do so in writing. Children under 18 require consent from a parent or guardian. Please contact us with questions. Thank you! ​ Download release form . Please complete and return to here info@scdaami.org

  • Partner with SAFER | -scdaami-

    SICKLE CELL 911: FAST ACCESS TO GUIDELINES & BETTER CARE Empowering medical professionals to implement evidence-based sickle cell action. Amplifying the patient's voice in care. OPIOIDS & SCD NIH GUIDELINES COMPLICATIONS ASH POCKET GUIDES ABOUT SAFE(R) SCD EDUCATION Learn more about implementing SAFER for sickle cell patients in your medical practice, facility, hospital system or agency.

  • SCDAA MARAC advisories | -scdaami-

    News media releases and alerts from SCDAA-MI press releases Advisories from SCDAA's Medical and Research Advisory Committee MARAC Advisory Statement on (December 14, 2020) - SHOW THIS TO YOUR FAMILY & FRIENDS TO HELP THEM HELP YOU. Covid-19 Vaccines ​ - SHOW THIS TO YOUR SCHOOL ADMINISTRATOR TO HELP THEM HELP YOU. ​MARAC Advisory Statement on (July 31, 2020) Post-secondary and Boarding School Education in the Age of COVID-19 - SHOW THIS TO YOUR EMPLOYER TO HELP THEM HELP YOU MARAC Advisory Statement for (July 30, 2020) SCD Patients Who are Teachers, Administrators, and Other Support Staff during School Reopening - SHOW THIS TO YOUR CHILD’S SCHOOL PRINCIPAL TO HELP THEM HELP YOU SCDAA MARAC Position on (July 27, 2020) 2020 School Reopening MARAC Advisory Statement Regarding (April 30, 2020) SCD Patients during the time of “Reopening” the U.S. Economy (May 27, 2020) Sickle Cell Disease and COVID-19: Provider Advisory: An Outline to Decrease Burden and Minimize Morbidity (April 18, 2020) Social Adjustments & Response to COVID-19 - SHOW THIS TO YOUR MEDICAL PROVIDERS TO HELP THEM HELP YOU (March 17, 2020) Health Alert for People with Sickle Cell Disease and their Caregivers , SCDAA Chief Medical Officer (March 13, 2020) A Health Note From Dr. Biree Andemariam ​

  • Services | -scdaami-

    our services For more information: Detroit Main Line: (313) 864-4406 Children's Hospital SC Clinic: (313) 745-5613 Sickle Cell Trait Counseling: (313) 595-0280 School/Job Assistance: (313) 595-0541 Email info@scdaami.org ​ Contact our nearest satellite office: Adult Clinic Caseworker at DMC: (313) 864-4406 Benton Harbor/Kalamazoo Area: (313) 505-4081 Grand Rapids/Muskegon Area: (616) 788-9816 Jackson/Lansing Area: (800) 842-0973 Saginaw/Flint Area: (989) 372-0256 SCDAA-MI provides a range of services to individuals with sickle cell and their families. This includes counseling, support groups, referrals for financial and medical help, college and employment assistance, sending children to summer camp each year. The agency also coordinates newborn screening for all babies born in Michigan. WHAT WE DO HERE TO HELP Services We Provide Do you have medical insurance, primary care, a hematologist? Do you need accommodations at school/work? Let us help you manage your life with sickle cell. Read More PARTNER RESOURCES Community Connections We've compiled a handy list of helpful partner resources you can use to help meet basic and emergency needs for yourself and/or your family. Read More CORONAVIRUS / COVID-19 What You Should Know Individuals with sickle cell run a higher risk of complications if they contract COVID-19. Get SCD-specific info and guidelines to help stay safe. Read More

  • Volunteer | -scdaami-

    volunteer Contact Us Photo Release Client Feedback We have a variety of ways you can help us at SCDAA-MI – even during COVID. We also offer verified volunteer hours for students. Social Media Ambassador – Like, share, re-post and re-tweet from our Facebook, Instagram and Twitter pages to help generate awareness of our work. Help us find and reach out to supporters in groups and on related pages and accounts. Educational sessions - Create lists of current topics and potential speakers, and helping us build our audiences. Advocacy – Reach out to elected officials online and on social media about policy actions effecting the sickle cell community Interested in something else? Let’s work together to find something that fits your commitment and schedule. ​ Just complete the volunteer form to let us know what you're interested in and when you're available. ​ If you're interested in joining our Board of Directors – Submit your CV and a cover letter indicating your connection to sickle cell to info@scdaami.org. ​ We appreciate everything you do for our cause! ​ Email: Phone: (313) 864-4406 info@scdaami.org Toll free: (800) 842-0973 Fax: (313) 864-9980 Volunteer Application Form Help us make a difference! First Name Last Name Email Phone Address Age A few words about you Please check here if you're under 18 Next

  • 2020 Sickle Cell Matters Walk | -scdaami-

    Donate/Join/Fundraise Since the Walk is now virtual, registration is optional. You can turn your registration fee into a donation, join/create a team or become a fundraiser. Team Set Up Once you create a team, you'll get an email for page set up. We also have step-by-step instructions here to personalize your page. Sponsor Info Your company sponsorship heightens the visibility of your commitment to social responsibility. The return on investment benefits us all. Vendor/Exhibitor This year we're offering two vendor experiences: Both provide virtual promotion, one also offers limited sponsor benefits. Legacy Warriors Are you a sickle cell warrior who's 40 or older? We invite you to join our Legacy Salute! Sign up here by 9/5 to be included. Click here to join in the virtual walk program on Sept. 19th Our 2020 Sickle Cell Matters Walk will still raise consciousness around the most common genetic disorder in the U.S. But this year it'll happen from wherever you are. More than just an awareness event, we join efforts to raise funds, promote the need for additional research, and combat medical inequities often faced by sickle cell patients. ​ We still need your support. ​​ Register, donate, sign up to fundraise, or start a team ! today How our virtual walk works Learn More Contests & Prizes Learn More Tribute to Fallen Warriors Learn More Salute to Legacy Warriors Learn More #WarriorsWipeItDown Challenge Learn More #SickleSlide Learn More Virtual Walk Day Agenda Join us Saturday, Sept. 19 on our Facebook page @sicklecellmichigan for a morning filled with celebration beginning at 10 a.m. (Lineup subject to change) ​ Welcome remarks #WarriorsWipeItDown & #SickleSlide Tribute to Fallen Warriors 2020 Graduation Virtual Open House Salute to Legacy Warriors Sponsor Showcase – GBT, Novartis, Medunik USA Vendor Slideshow Award presentations Let’s Move! Lead volunteers & key supporters Deborah Smith Pollard Honorary Walk Chair Deborah Smith Pollard , is co-host of "Sunday Morning Inspiration" on MIX 92.3 FM and Professor of English Literature at the University of Michigan-Dearborn. Read More Dr. Ahmar Zaidi Honorary Walk Co-Chair is a Pediatric Oncologist/Hematologist, in the Comprehensive Sickle Cell Clinic at Children’s Hospital of Michigan, and nationally known SCD advocate. "Dr. Z," Ahma Zaidi Read More You Sponsors & Vendors helps take our walk from good to great and enables us to changes lives and create possibilities - especially in times like these. Your company Read More 2020 Sickle Cell Matters Walk Sponsors Diamond Presenting Sponsor Silver Sponsors Copper Sponsor Pfizer Functional Fluidics Check our leaderboard frequently to see how your campaign is doing and what the competition is up to. For additional information, please contact the following SCDAA-MI staff for specific assistance or call (313) 864-4406: Registration or team setup - email Kristal Johnson Sponsorships - email Stefanie Worth Vendor Information - email Tracie Conic

Sickle Cell Disease Association of America -
Michigan Chapter, Inc.

18516 James Couzens Fwy, Detroit, MI 48235

(313) 864-4406 OR (800) 842-0973

info@scdaami.org

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Originators of the SAFER Initiative (c) 2020

© 2020 Sickle Cell Disease Association of America - Michigan Chapter, Inc. All rights reserved.

SCDAA-MI is a qualified 501(c)(3) tax-exempt organization. Tax ID Number: 38-1963640.