77 items found
- Our Impact | -scdaami-
our impact Download a PDF of our 2018-19 Community Impact Report.
- Sickle Cell Disease | -scdaami-
sickle cell disease Living with sickle cell disease isn't easy, but proper knowledge about the condition will help patients live a longer, healthier life and guide trait carriers in making educated child-bearing decisions. Symptoms & Complications Sickle cell trait A history of sickle cell What Is Sickle Cell Disease? Sickle cell is an inherited blood disorder in which the red blood cells change their shape. It is a genetic abnormality and is caused by an abnormal type of hemoglobin, called hemoglobin S or sickle hemoglobin. Normal red blood cells have a disc-like shape, but in patients of sickle cell disease, they take on a crescent or sickle shape. Normal blood cells carry oxygen to the body, but altered cells cannot move easily through your blood vessels, which affects the oxygen supply. These altered cells cannot carry oxygen properly because when they release oxygen, it sticks together and changes the shape of the red blood cell. Prevalence of Sickle Cell Disease Sickle cell has existed for thousands of years and millions of people around the world suffer from the disease, but it's more common in people with an African bloodline. It is also quite common in people whose ancestors come from the Arabian Peninsula; Mediterranean countries such as Turkey, Greece, and Italy; Central America; Spanish-speaking regions in South America; and parts of the Caribbean. As a whole, it affects approximately 100,000 Americans and is the most common heritable blood disorder in the U.S. How Do You Inherit Sickle Cell Disease? Sickle cell disease is not contagious – you're born with it. A child may have this disease when he/she inherits one hemoglobin S gene from each parent. About 1 in every 365 African American babies are born with sickle cell each year and. While the disease primarily affects African Americans and people of color - including individuals of Hispanic and Middle Eastern descent, anyone can inherit sickle cell if the genetics are in place. There are also other sickle cell mutations, including Hemoglobin SC disease and hemoglobin Sβ thalassemia, the two most common. Sickle Cell Trait If you inherit only one sickle hemoglobin gene from a parent you will carry the sickle cell trait. While the trait was once thought to be innocuous, in recent years more has been learned about carriers. People with the trait are more likely to suffer from conditions such as urinary tract infections or blood in the urine. Even athletes with sickle cell trait are now advised to take special precautions with their health. Learn more about sickle cell trait Artwork copyright Ebony.com . Explore More In-Depth Information American Society of Hematology ASH Centers for Disease Control CDC National Institutes of Health NIH Back to the top Sickle Cell Disease: Milestones in Research and Clinical Progress (REVISED September 2018) - download here A History of Sickle Cell Download the PDF here Back to the top
- 2019 Sickle Cell Matters Annual Walk | -scdaami-
2019 Sickle Cell Matters Walk Become a Sponsor Become a Vendor
- Partner with SAFER | -scdaami-
SICKLE CELL 911: FAST ACCESS TO GUIDELINES & BETTER CARE Empowering medical professionals to implement evidence-based sickle cell action. Amplifying the patient's voice in care. OPIOIDS & SCD NIH GUIDELINES COMPLICATIONS ASH POCKET GUIDES ABOUT SAFE(R) SCD EDUCATION Learn more about implementing SAFER for sickle cell patients in your medical practice, facility, hospital system or agency.
- Get Involved | -scdaami-
get involved Together our tenacity and commitment have greatly brightened the future for sickle cell: comprehensive pediatric care has become a medical standard throughout most of the U.S., allowing patients to pursue college educations, take on dream careers, marry and welcome extended families. At the same time, many challenges remain: awareness among the adult medical community lags behind pediatric expertise at the expense of patient health. Sickle cell still bears the weight of stigma attached to systemic discrimination. While research is on the uptick, treatments are limited. There is no universal cure. Your support matters in our quest for consciousness, equity, and a cure. Please join us today. DONATE The Sickle Cell Disease Association of America - Michigan Chapter thrives on the support of dedicated patients/clients, staff, volunteers, funders, sponsors, donors , and community partners . We've remained committed to our mission of improving the lives of people living with sickle cell disease for 48 years. Give today . ADVOCATE This is an exciting time for the sickle cell community as new treatments have recently become available and interest in research to find a cure has spiked. Yet, insurance hindrances, misplaced opioid restrictions, and ongoing systemic discrimination continue to block access to proper care and threaten the lives of patients. Raise your voice for sickle cell. VOLUNTEER There are always volunteer opportunities at SCDAA-MI for assistance at our annual Sickle Cell Matters Walk, encouraging an increased social media presence, office help, committees, and more. Complete our volunteer form to let us know you're interested, and we'll contact you when opportunities arise.
- Services Overview | -scdaami-
our services For more information: Detroit Main Line: (313) 864-4406 Children's Hospital SC Clinic: (313) 745-5613 Sickle Cell Trait Counseling: (313) 595-0280 School/Job Assistance: (313) 595-0541 Email firstname.lastname@example.org Contact our nearest satellite office: Adult Clinic Caseworker at DMC :(313) 864-4406 Benton Harbor/Kalamazoo Area: (313) 505-4081 Grand Rapids/Muskegon Area: (616) 788-9816 Jackson/Lansing Area: (800) 842-0973 Saginaw/Flint Area: (989) 372-0256 SCDAA-MI provides a range of services to individuals with sickle cell and their families. This includes counseling, support groups, referrals for financial and medical help, college and employment assistance, sending children to summer camp each year. The agency also coordinates newborn screening for all babies born in Michigan. WHAT WE DO HERE TO HELP Services We Provide Do you have medical insurance, primary care, a hematologist? Do you need accommodations at school/work? Let us help you manage your life with sickle cell. Read More PARTNER RESOURCES Community Connections We've compiled a handy list of helpful partner resources you can use to help meet basic and emergency needs for yourself and/or your family. Read More COVID-19 INFORMATION What You Should Know Individuals with sickle cell run a higher risk of complications if they contract COVID-19. Get SCD-specific info and guidelines to help stay safe. Read More
- Sickle Cell Trait | -scdaami-
If you inherit only one sickle hemoglobin gene from a parent you will carry the sickle cell trait. While the trait was once thought to be innocuous, in recent years more has been learned about carriers. People with the trait are more likely to suffer from conditions such as urinary tract infections or blood in the urine. Even athletes with sickle cell trait are now advised to take special precautions. sickle cell trait Sickle Cell Trait Facts In some people the red blood cells can take on the shape of a farmer’s sickle. If you are born with this gene from one parent you have SICKLE CELL TRAIT. If you are born with this gene from both parents you have SICKLE CELL DISEASE. A person with sickle cell DISEASE has sickle cells in the blood stream which can cause health problems Such as pain, infection and anemia. A person with sickle cell TRAIT does not have sickle cells in the blood stream and does not have a disease. They're considered to be a carrier. If both parents have sickle cell TRAIT, each time a child is born there is a 25% (1 in 4) chance the child will have sickle cell DISEASE. This doesn't mean that if you have four children, one of them will have a chance of being born with sickle cell disease. It means that each child has a 25% chance of being born with the disease. There are two other fairly common traits that can also result in having a child with sickle cell disease: h emoglobin C trait and thalassemia trait. Since you do not get sick from any of these traits, you may have one of them and not know it. People of childbearing age should know if they have any of these traits so that they can make informed decisions regarding family planning. Know your trait status! View and download the full infographic here . SCDAA-MI offers free testing for sickle cell trait and sickle cell disease at its office: 18516 James Couzens Fwy, Detroit, MI 48235. Appointments and walk-ins are welcome. Call or contact us for more information. More info on the CDC's sickle cell trait site. Learn more about the NCAA and sickle cell trait
- Contact Us | -scdaami-
contact us Volunteer Photo Release Client Feedback WE'RE NOW WORKING REMOTELY TO HELP PROTECT OUR COMMUNITY. PLEASE CALL FOR ASSISTANCE. THANK YOU! If you need assistance, have questions, or would like to partner in SCDAA-MI's work,our staff will be happy to help. Contact Us First Name Last Name Email Phone Type your message here... Thanks for reaching out! Submit Email: email@example.com Detroit/SE Mich: 313-864-4406 or 800-842-0973 Children's Hospital SC Clinic: 313-745-5613 Sickle Cell Trait Counseling: 313-595-0541 School/Job Assistance: Our Address: 18516 James Couzens Fwy. Detroit, Michigan 48235 Hours of Operation: 9 a.m. - 5 p.m. Monday - Friday You can also contact our nearest satellite offices: Detroit Area (313) 613-7327 Benton Harbor/Kalamazoo Area: (304) 404-4229 Grand Rapids/Muskegon Area: (616) 788-9816 Jackson/Lansing Area: (517) 249-9528 Saginaw/Flint Area: (989) 372-0256 Photo/Video Release The Sickle Cell Disease Association of America - Michigan Chapter, Inc. frequently takes photos and video at its events and activities and ask that participants sign a waiver allowing the use of their likeness in publications, our web site, social media sites, and other public forms. You will only need to complete this form once. If at any time you wish to revoke use of your likeness in the future, you must do so in writing. Children under 18 require consent from a parent or guardian. Please contact us with questions. Thank you! Download release form here . Please complete and return to firstname.lastname@example.org
- News and Media Archive | -scdaami-
An archive of news and media from SCDAA-MI news archive World Sickle Cell Day On Wednesday, June 19, GBT hosted guest speaker Dr. Wanda Whitten-Shurney, the CEO and Medical Director of the Michigan chapter of the Sickle Cell Disease Association of America (SCDAA), as part of its World Sickle Cell Day (WSCD) activities. As part of GBT's support, employees were encouraged to wear their “Hope” T-shirts provided by GBT and designed by artist and SCD activist, Hertz Nazaire. Blood Drive Pictured Michelle Huckaby, SCDAAMI Community Health Worker, Kristal Cobb, SCDAAMI Administrative Assistant, Heather and Tracey Moorehead, Board Members, Anastasia Worthy, SCDAAMI Youth Ambassador and Kym Worthy, SCDAAMI Board Chair. Myths about Sickle Cell Dr. Wanda Whitten-Shurney, CEO and Medical Director of the Sickle Cell Disease Association of America – Michigan Chapter and former SCDAA-MI board member Amyre Makupson discuss myths surrounding sickle cell and facts of the disease .
- 2020 Walk Day | -scdaami-
Since we have announced our Save the date for our 2021 Sickle Cell Matters Awareness Walk, We look forward to your participation! Here are highlights from last year's walk..... Enjoy!!!! I'm a paragraph. Click here to add your own text and edit me. It's easy. The Sickle Cell Matters Virtual Walk program starts at 10 :15 a.m. EST here and on Facebook @SickleCellMichigan! YOUR GUIDE TO THE daY* *Program times are approximate You can still donate to the 2020 Sickle Cell Matters Virtual Walk through September 30th. We appreciate your support! Donate to the cause or a team Click the image to download a PDF version of the day's agenda. 10:15 - WELCOME REMARKS SCDAA-MI CEO & Medical Director, Dr. Wanda Whitten-Shurney Honorary Chair, Deborah Smith-Pollard Honorary C-Chair, Dr. Ahmar Zaidi, "Dr. Z." 10:21 - #SICKLESLIDE Join Dr. Shurney and the staff of the Bottomless Toy Chest in the #SickleSlide 10:24 - WARRIOR RECOGNITIONS Tribute to Fallen Warriors - Those We've Lost 2020 Graduation Open House Celebration Salute to Legacy Warriors - Those 40 & Over 10:37 - MEET OUR SPONSORS Greetings from Medunik USA & What You Should Know About Sickle Cell Anemia Wayne County Community College District Tour Emmaus Life Sciences - About Endari 11:14 - PRODUCTS & SERVICES Pfizer - Functional Fluidics Sick Cells - Versiti - Terumo 11:16 - GIVEAWAYS & AWARDS 1st & 2nd Place Fundraising Teams (as of 9/12) Most Team Members (as of 9/12) T-Shirt/Poster Design Contest Winner Giveaway Winner From All Participants (as of 9/5 11:20 - TIME TO MOVE! Now's the time to move how you choose. Take your walk, do a little yoga, or head out to your ballot box to drop off your election ballot. Be sure to post your photos u sing #SickleCellMattersWalkMI #SickleCellMatters #SickleCellLivesMatter Dr. Wanda Whitten-Shurney Deborah Smith-Pollard Dr. Ahmar Zaidi Thank you for making our 2020 Sickle Cell Matters Virtual Walk a huge success! DONATE NOW Our 2020 Sickle Cell Matters Walk sponsors!
- Client Feedback | -scdaami-
client feedback Volunteer Photo Release Client Feedback SCDAA-MI has been helping improve the lives of individuals with sickle cell for nearly half a century. How are we doing? We'd like to hear from you to help shape our work for the next 50 years. Use the form below to tell us how we've been able to help you, what we can do better, and to share your ideas for other services. Your voice matters! Thanks for sharing your feedback!