76 items found
- 2020 Walk Ads | -scdaami-
2020 Sickle Cell Matters Virtual Walk Sponsor & Vendor Gallery Terumo Vendors: Sick Cells and Versiti Blood Services Thank you to our 2020 Sickle Cell Matters Walk sponsors!
- Events | -scdaami-
2019 holidays Camp Cancellation2 WSU 02282020 Whitten-Shurney MD Register2 GivingTuesdayNow Walk promo IMG_0946 SCDAAMI Stabenow meeting Ahmar TEDx IMG_0943 iseeu 2022 Events Mark your calendar and join us for fun, educational, advocacy, and celebratory events throughout the year. (Virtual for now, of course.) SCDAA-MI Upcoming Events Download the full calendar of events here. Events subject to change. Have questions? Need info? Want to send an idea for an educational topic? Contact us at email@example.com or 313.864.4406.
- Donation Confirmation | -scdaami-
Your gift to the Sickle Cell Disease Association of America - Michigan Chapter helps ensure that counseling, educational, medical, and basic needs services are addressed for people with sickle cell. By supporting our work, you help improve lives. If you chose to make your gift anonymously, your name will not be listed in any materials where we might recognize donors. You will receive electronic receipts from PayPal Giving Fund. We will email a gift acknowledgement to the name and email address you provided. Thank you for your support! donation confirmation
- SCDAA MARAC advisories | -scdaami-
News media releases and alerts from SCDAA-MI press releases Advisories from SCDAA's Medical and Research Advisory Committee Sickle Cell Disease Association of America Medical and Research Advisory Committee COVID-19 Update “December 23, 2021 – SCDAA MARAC reminds the sickle cell community that the COVID-19 pandemic is having another increase in infections. New variants like omicron are emerging, as is common for RNA viruses, and vaccination rates need to consequently improve. Vaccinations can protect against severe illness. A new mediation might also help as early treatment for infected individuals.” Further details/recommendations on website: https://www.sicklecelldisease.org/2021/12/23/marac-advisory-statement-update-about-covid-19/ MARAC Advisory Statement on Post-secondary and Boarding School Education in the Age of COVID-19 (July 31, 2020) - SHOW THIS TO YOUR SCHOOL ADMINISTRATOR TO HELP THEM HELP YOU. MARAC Advisory Statement for SCD Patients Who are Teachers, Administrators, and Other Support Staff during School Reopening (July 30, 2020) - SHOW THIS TO YOUR EMPLOYER TO HELP THEM HELP YOU SCDAA MARAC Position on 2020 School Reopening (July 27, 2020) - SHOW THIS TO YOUR CHILD’S SCHOOL PRINCIPAL TO HELP THEM HELP YOU MARAC Advisory Statement Regarding SCD Patients during the time of “Reopening” the U.S. Economy (April 30, 2020) Sickle Cell Disease and COVID-19: Provider Advisory: An Outline to Decrease Burden and Minimize Morbidity (May 27, 2020) Health Alert for People with Sickle Cell Disease and their Caregivers (March 17, 2020) - SHOW THIS TO YOUR MEDICAL PROVIDERS TO HELP THEM HELP YOU A Health Note From Dr. Biree Andemariam , SCDAA Chief Medical Officer (March 13, 2020)
- Sickle Cell Trait | -scdaami-
If you inherit only one sickle hemoglobin gene from a parent you will carry the sickle cell trait. While the trait was once thought to be innocuous, in recent years more has been learned about carriers. People with the trait are more likely to suffer from conditions such as urinary tract infections or blood in the urine. Even athletes with sickle cell trait are now advised to take special precautions. sickle cell trait Sickle Cell Trait Facts In some people the red blood cells can take on the shape of a farmer’s sickle. If you are born with this gene from one parent you have SICKLE CELL TRAIT. If you are born with this gene from both parents you have SICKLE CELL DISEASE. A person with sickle cell DISEASE has sickle cells in the blood stream which can cause health problems Such as pain, infection and anemia. A person with sickle cell TRAIT does not have sickle cells in the blood stream and does not have a disease. They're considered to be a carrier. If both parents have sickle cell TRAIT, each time a child is born there is a 25% (1 in 4) chance the child will have sickle cell DISEASE. This doesn't mean that if you have four children, one of them will have a chance of being born with sickle cell disease. It means that each child has a 25% chance of being born with the disease. There are two other fairly common traits that can also result in having a child with sickle cell disease: h emoglobin C trait and thalassemia trait. Since you do not get sick from any of these traits, you may have one of them and not know it. People of childbearing age should know if they have any of these traits so that they can make informed decisions regarding family planning. Know your trait status! View and download the full infographic here . SCDAA-MI offers free testing for sickle cell trait and sickle cell disease at its office: 18516 James Couzens Fwy, Detroit, MI 48235. Appointments and walk-ins are welcome. Call or contact us for more information. More info on the CDC's sickle cell trait site. Learn more about the NCAA and sickle cell trait
- 2020 Walk Day | -scdaami-
Since we have announced our Save the date for our 2021 Sickle Cell Matters Awareness Walk, We look forward to your participation! Here are highlights from last year's walk..... Enjoy!!!! I'm a paragraph. Click here to add your own text and edit me. It's easy. The Sickle Cell Matters Virtual Walk program starts at 10 :15 a.m. EST here and on Facebook @SickleCellMichigan! YOUR GUIDE TO THE daY* *Program times are approximate You can still donate to the 2020 Sickle Cell Matters Virtual Walk through September 30th. We appreciate your support! Donate to the cause or a team Click the image to download a PDF version of the day's agenda. 10:15 - WELCOME REMARKS SCDAA-MI CEO & Medical Director, Dr. Wanda Whitten-Shurney Honorary Chair, Deborah Smith-Pollard Honorary C-Chair, Dr. Ahmar Zaidi, "Dr. Z." 10:21 - #SICKLESLIDE Join Dr. Shurney and the staff of the Bottomless Toy Chest in the #SickleSlide 10:24 - WARRIOR RECOGNITIONS Tribute to Fallen Warriors - Those We've Lost 2020 Graduation Open House Celebration Salute to Legacy Warriors - Those 40 & Over 10:37 - MEET OUR SPONSORS Greetings from Medunik USA & What You Should Know About Sickle Cell Anemia Wayne County Community College District Tour Emmaus Life Sciences - About Endari 11:14 - PRODUCTS & SERVICES Pfizer - Functional Fluidics Sick Cells - Versiti - Terumo 11:16 - GIVEAWAYS & AWARDS 1st & 2nd Place Fundraising Teams (as of 9/12) Most Team Members (as of 9/12) T-Shirt/Poster Design Contest Winner Giveaway Winner From All Participants (as of 9/5 11:20 - TIME TO MOVE! Now's the time to move how you choose. Take your walk, do a little yoga, or head out to your ballot box to drop off your election ballot. Be sure to post your photos u sing #SickleCellMattersWalkMI #SickleCellMatters #SickleCellLivesMatter Dr. Wanda Whitten-Shurney Deborah Smith-Pollard Dr. Ahmar Zaidi Thank you for making our 2020 Sickle Cell Matters Virtual Walk a huge success! DONATE NOW Our 2020 Sickle Cell Matters Walk sponsors!
- Donation Page | -scdaami-
Your gift to the Sickle Cell Disease Association of America - Michigan Chapter helps ensure that counseling, educational, medical, and basic needs services are addressed for people with sickle cell. By supporting our work, you help improve lives. Thank you for your support! donation page Donate Now How much are you donating? $15 $25 $50 $75 $100 Other First Name Last Name I'd like this donation to remain anonymous Company Street Address City, STATE Zip Email Address Donating in honor of: DONATE Thank you for helping us improve the lives of people with sickle cell!
- Coronavirus | -scdaami-
Information for our sickle cell community during the COVID-19 pandemic Information surrounding COVID-19 changes rapidly. We'll continue providing updates here. HEALTH ALERT: What our Sickle Cell Community Needs to Know About the Coronavirus (COVID-19) from SCDAA PATIENTS RETURN TO WORK LETTER PROVIDERS SCD COVID-19 REGISTRY Be prepared, not scared! We encourage sickle cell patients to follow the guidance provided in the national Sickle Cell Disease Association of America's Health Alert and for everyone to practice sanitation and cleaning practices advised by the CDC, including avoiding crowds and gatherings (events, parties, church, etc.). Be aware that the virus can live on some surfaces for 2-3 days, and on clothing for unknown periods of time . Contact your doctor if you experience symptoms or have been in contact with COVID-19. Do you need medical insurance? Or a primary care physician (PCP)? Are you feeling underprepared or overwhelmed? SCDAA-MI staff is still working to meet your needs - just remotely. Please contact us with questions or for assistance at (313) 864-4406 or (800) 842-0973 or firstname.lastname@example.org . Information about COVID-19 Michigan COVID-19 News and Information COVID-19 guidance for sickle cell from the Centers for Disease Control (CDC) COVID-19 Info from Michigan Health Departments SCDAA-MI worksite protocols If you've been exposed to COVID-19 Resources for daily life during the pandemic Click here for a (PDF ) of the guide. La guía está disponible en español . Links to food, education, mental health resources and more. Job help : Unemployment information, guidelines for returning to work, and physician letters EMERGENCY PODCAST ON SICKLE CELL AND COVID-19 If you need assistance navigating any of the services or resources listed above, please contact us: Detroit/SE Mich: (313) 864-4406 or (800)-842-0973 Children's Hospital SC Clinic: (313) 745-5613 Sickle Cell Trait Counseling: (313) 451-0014 School/Job Assistance: (734) 494-2119 Email: email@example.com Contact our nearest satellite office: Adult Clinic Caseworker at DMC : (313) 864-4406 Benton Harbor/Kalamazoo Area: (313) 505-4081 Grand Rapids/Muskegon Area: (616) 426-9259 Jackson/Lansing Area: (800) 842-0973 Saginaw/Flint Area: (989) 372-0256
- Advocacy and Legislation | -scdaami-
Your voice matters in the election process. The representatives we choose make decisions that affect access to healthcare, regional transportation, insurance laws, disability protections, prescription pricing and more. Join us as we speak out on behalf of individuals living with sickle cell and the legislation that affects them. OUR ADVOCACY PARTNERS Sickle Cell Disease Association of America Rare Disease Legislative Advocates Every Day Life Foundation Health Can’t Wait Coalition American Society of Hematology ARE YOU READY TO VOTE? To be eligible to vote in Michigan, you must be: A Michigan resident (at the time you register) and a resident of your city or township for at least 30 days (when you vote) A United States citizen At least 18 years of age (when you vote) Not currently serving a sentence in jail or prison Learn more about voting in Michigan here . Check your voter registration status here . Register online here . Absentee voting “Due to the constitutional amendment passed by voters in 2018, all eligible and registered voters in Michigan may request an absent voter ballot without providing a reason. They can visit their local clerk’s office for an absent voter ballot application or download one at Michigan.gov/Vote ” Michigan ballot drop locations You can take your absentee ballot to the drop box in your jurisdiction and track your ballot through the election process. advocacy & legislation Current issues we’re working on include: Securing coverage for new sickle cell treatments (We'll keep you posted!) DO YOU KNOW WHO REPRESENTS YOU? You can click here and enter your address to find your local, state and federal elected officials along with their names and contact information. Use the map to see Michigan's legislative districts . World Sickle Cell Disease Awareness Day in Michigan - June 19, 2020 2020 World Sickle Cell Day received legislative support this year as Rep. Ronnie Peterson introduced House Resolution #280 declaring June 19, 2020 as World Sickle Cell Awareness Day in Michigan. Rep. Peterson also introduced a bill to create a sickle cell license plate for Michigan. The bill received outstanding bi-partisan support. We are deeply grateful for these actions from our elected officials and the members of the Michigan Legislative Black Caucus who were able to join us at the capital. #BlackPatientLivesMatter