Your voice matters in the election process. The representatives we choose make decisions that affect access to healthcare, regional transportation, insurance laws, disability protections, prescription pricing and more. Join us as we speak out on behalf of individuals living with sickle cell and the legislation that affects them.


Current issues we’re working on include:

  • SB612 (Michigan) - A bill to change legislation around insurance preauthorization and step requirements. Learn more and take action. (Complete the action form to create a pre-written email that will be sent directly to your senator.)

  • New Medicaid work requirements

  • Securing coverage for new sickle cell treatments (We'll keep you posted!)


Other recent issues

  • “The Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2018” (federal) – Passed in December 2018

  • Michigan's medical marijuana law - View a summary of the bill, what conditions are covered by the bill, and its restrictions


Would you like to be able to join us on an advocacy meeting to speak with a legislator? Below, you can watch a training webinar presented to our sickle cell advocates by the Every Life Foundation for Rare Diseases. (90 minutes, mp4 webinar) 


March Presidential Primary

The deadline to register to vote in this year’s March presidential primary is Feb. 24 for any form but in-person. Last day for in-person registration is Feb. 25.


November Presidential Election

The deadline to register to vote in this year’s November presidential election is Oct. 23 for any form but in-person. Last day for in-person registration is Nov. 3.


Click here to check your voter registration status.


Absentee voting

“Due to the constitutional amendment passed by voters in 2018, all eligible and registered voters in Michigan may request an absent voter ballot without providing a reason. They can visit their local clerk’s office for an absent voter ballot application or download one at


Do you know who represents you?

You can click here and enter your address to discover your local, state and federal elected officials along with their names and contact information.

advocacy &legislation


Sickle Cell Disease Association of America - Michigan Chapter
18516 James Couzens Fwy, Detroit, MI 48235

(313) 864-4406 OR (800) 842-0973

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