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2019 holidays Camp Cancellation2 WSU 02282020 Whitten-Shurney MD Register2 GivingTuesdayNow Walk promo IMG_0946 SCDAAMI Stabenow meeting Ahmar TEDx IMG_0943 iseeu 2021 Events Mark your calendar and join us for fun, educational, advocacy, and celebratory events throughout the year. (Virtual for now, of course.) SCDAA-MI Upcoming Events Download the full calendar of events here . Events subject to change. A weekend of awareness and action for 2020 World Sickle Cell Day FRIDAY, JUNE 19: #MaskUp4SickleCell for World Sickle Cell Day Grab a red mask and get ready to #MaskUp4SickleCell on World Sickle Cell Day. This is a day to create awareness and inspire action among individuals with sickle cell and the allies in our community. On Friday, June 19, put on your red mask (whatever red cloth you have handy to use), and head over to Facebook to post a selfie. Have fun and edit your photo with a note about what your mask represents for your life with sickle cell and then write a post about what's #BehindTheMask . Invite your friends and family to join in supporting the cause by posting themselves in red masks, too. We'll have a special frame you can use on Facebook. You can also take a screenshot of that photo to post on Instagram, Twitter and SnapChat. Be sure to tag @sicklecellmichigan so we can share your post. Watch our social media pages next week for the latest updates and how to join the full campaign. You can also click here to download a step-by-step guide on how to participate. SATURDAY, JUNE 20TH: Virtual Graduation Open House Congratulations Class of 2020! We're recognizing our graduating sickle cell Warriors with a Virtual Open House on Saturday, June 20 as part of our World Sickle Cell Day weekend. Do you know someone who should be included? To be eligible, the student must have sickle cell, live in Michigan and be a December 2019 or Spring/Summer 2020 graduate from high school, college or trade school. Children of individuals with sickle cell who are graduating within these time frames are also eligible. The graduate will need to complete an information form and send us photos no later than midnight, Sunday, May 31. For all the details, please visit our Class of 2020 page. Spread the word! SUNDAY, JUNE 21: Sickle Sabbath We invite you to mark our first Sickle Sabbath in your place of worship on Saturday, June 20, or Sunday June 21 (depending on when you observe your sabbath). While sickle cell disease predominately affects people of African, Latino and Middle Eastern descent, it can affect anyone of any ethnicity or nationality. All faiths and denominations are encouraged to join us in educating their congregations about sickle cell disease and the importance of knowing your sickle cell trait status. Sickle Sabbath flyers, fact sheets and a social media graphic are available on our web site at www.scdaami.org/sicklesabbath . Participation is free, however, love offerings that day are welcome to support our education, outreach and advocacy services. To join the event, talk with your worship leader or health ministry and share the Sickle Sabbath materials for distribution to your congregation members. We also encourage you to post and share the information on social media pages. For additional information, please email us or call 313.864.4406. Have questions? Need info? Want to send an idea for an educational topic? Contact us at info@scdaami.org or 313.864.4406.

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Click here to help us celebrate Let’s Go Let’s Go Click here to Celebrate! Sickle cell is a complex biopsychosocial condition affecting every blood vessel, organ, and system in the body. While its severity impacts each individual uniquely, sickle cell’s most common visible presentation is excruciating, unpredictable pain. However, the condition’s less visible complications of continual hemolytic anemia and vascular and organ damage are silent, but life-shortening, ramifications suffered by every individual with sickle cell. To play, press and hold the enter key. To stop, release the enter key. SCDAA-MI provides education, assistance, and advocacy for individuals living with and families affected by sickle cell disease. Our services are available throughout Michigan and span lifetime needs. OPPORTUNITIES TO LEARN - SHARE - DISCOVER CHEAT CODES STATE OF SICKLE CELL DISEASE EXPLORE TREATMENTS WAYS TO ENGAGE WITH SCDAA-MI NEWS & MEDIA SPONSORS & ALLIANCES QUESTIONS ABOUT HYDROXYUREA WE'RE NOW WORKING REMOTELY TO HELP PROTECT OUR COMMUNITY. PLEASE CALL FOR ASSISTANCE. THANK YOU! DETROIT OFFICE 18516 James Couzens Fwy Detroit, MI 48235 Mon - Fri: 9 a.m. - 5 p.m. ​​Special Event Hours as Posted CONTACT US Detroit/SE Mich: (313) 864-4406 or ( 800) 842-0973 Children's Hospital SC Clinic: (313) 745-5613 Sickle Cell Trait Counseling: (313) 595-0280 School/Job Assistance: (313) 595-0541 Email: info@scdaami.org SATELLITE OFFICES Adult Clinic Caseworker at DMC: (313) 864-4406 Benton Harbor/Kalamazoo Area: (313) 505-4081 Grand Rapids/Muskegon Area: (616) 788-9816 Jackson/Lansing Area: (800) 842-0973 Saginaw/Flint Area: (989) 372-0256 THANK YOU TO OUR FUNDERS & SPONSORS

Donate/Join/Fundraise Since the Walk is now virtual, registration is optional. You can turn your registration fee into a donation, join/create a team or become a fundraiser. Team Set Up Once you create a team, you'll get an email for page set up. We also have step-by-step instructions here to personalize your page. Sponsor Info Your company sponsorship heightens the visibility of your commitment to social responsibility. The return on investment benefits us all. Vendor/Exhibitor This year we're offering two vendor experiences: Both provide virtual promotion, one also offers limited sponsor benefits. Legacy Warriors Are you a sickle cell warrior who's 40 or older? We invite you to join our Legacy Salute! Sign up here by 9/5 to be included. Click here to join in the virtual walk program on Sept. 19th Our 2020 Sickle Cell Matters Walk will still raise consciousness around the most common genetic disorder in the U.S. But this year it'll happen from wherever you are. More than just an awareness event, we join efforts to raise funds, promote the need for additional research, and combat medical inequities often faced by sickle cell patients. ​ We still need your support. Register, donate, sign up to fundraise, or start a team today ! ​​ How our virtual walk works Learn More Contests & Prizes Learn More Tribute to Fallen Warriors Learn More Salute to Legacy Warriors Learn More #WarriorsWipeItDown Challenge Learn More #SickleSlide Learn More Virtual Walk Day Agenda Join us Saturday, Sept. 19 on our Facebook page @sicklecellmichigan for a morning filled with celebration beginning at 10 a.m. (Lineup subject to change) ​ Welcome remarks #WarriorsWipeItDown & #SickleSlide Tribute to Fallen Warriors 2020 Graduation Virtual Open House Salute to Legacy Warriors Sponsor Showcase – GBT, Novartis, Medunik USA Vendor Slideshow Award presentations Let’s Move! Lead volunteers & key supporters Deborah Smith Pollard Honorary Walk Chair Deborah Smith Pollard , is co-host of "Sunday Morning Inspiration" on MIX 92.3 FM and Professor of English Literature at the University of Michigan-Dearborn. Read More Dr. Ahmar Zaidi Honorary Walk Co-Chair "Dr. Z," Ahma Zaidi is a Pediatric Oncologist/Hematologist, in the Comprehensive Sickle Cell Clinic at Children’s Hospital of Michigan, and nationally known SCD advocate. Read More You Sponsors & Vendors Your company helps take our walk from good to great and enables us to changes lives and create possibilities - especially in times like these. Read More 2020 Sickle Cell Matters Walk Sponsors Diamond Presenting Sponsor Silver Sponsors Copper Sponsor Pfizer Functional Fluidics Check our leaderboard frequently to see how your campaign is doing and what the competition is up to. For additional information, please contact the following SCDAA-MI staff for specific assistance or call (313) 864-4406: Registration or team setup - email Kristal Johnson Sponsorships - email Stefanie Worth Vendor Information - email Tracie Conic

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Sickle Cell Disease Association of America - Michigan Chapter Staff Tracie L. Conic, M.A., B.S.W ​Director of Client Services/HIPAA Compliance Officer ​ ​ Tonya Ashwood-Malone Executive Assistant/Data Manager ​ Aaron Brown, B.S.W. Community Health Worker/Patient Advocate Detroit Michael Copeland, B.S. Community Health Worker/Patient Advocate Grand Rapids/Muskegon Area ​Vilma Escamilla-Duran Program Assistant Ben Frazier, B.S.W. Community Health Worker/Patient Advocate Saginaw/Flint Area Melanie Greer, B.S. Community Health Worker/Patient Advocate Benton Harbor/Kalamazoo ​ ​ Craig Bradley Director of Operations & Outreach ​ Darlene Hunt Maintenance/Courier Kristal Johnson-Cobb Administrative Assistant Cree King Newborn Screening Assistant ​ Jerica McBride, M.A. Education/Career Coordinator ​ Angela McCreary, B.S.W. Community Health Worker/Patient Advocate Lansing/Jackson Area Richard Reed Finance Manager Khaleeda Robinson, B.S. Community Educator/Trait Counselor ​ Wanda Whitten-Shurney, M.D. CEO & Medical Director our staff