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Sickle Cell Michigan Detroit - SCDAAMI
SCDAA-MI SICKLE CELL DISEASE ASSOCIATION OF AMERICA - MICHIGAN CHAPTER OUR MISSION: To maximize the quality of life of individuals living with sickle cell disease. To enable individuals with sickle cell trait to make informed decisions with respect to family planning. To provide education and testing for the general public. Sickle cell is a complex biopsychosocial condition affecting every blood vessel, organ, and system in the body. While its severity impacts each individual uniquely, sickle cell’s most common visible presentation is excruciating, unpredictable pain. However, the condition’s less visible complications of continual hemolytic anemia and vascular and organ damage are silent, but life-shortening, ramifications suffered by every individual with sickle cell. Watch the Virtual Walk program 2020 was our best fundraising walk ever! Thanks for your support! Need Help Call or email us if you need help. SCD COVID-19 health advisories from SCDAA's MARAC Virtual Fall Camp Apply to North Star Reach's virtual fall camp SAFER Sickle Cell 911 We're keeping patients SAFE(R) by working with physicians to implement guideline-based care. Feb 29th Treatment Workshop Dr. Shurney and Dr. Z provided a day of great info at our Treatment Workshop! Ask Your Advocate to Speak Up! Learn more about your rights as a patient with these useful resources from The Joint Commission. CDC SCD Opioid Clarification Graphic In Feb. 2019, the CDC issued a clarification of its opioid guidelines as related to sickle cell. Those guidelines were not intended for the management of SCD and medical professionals should refer to NIH NHLBI guidelines for proper administration of narcotics. Watch the Virtual Walk program 2020 was our best fundraising walk ever! Thanks for your support! Need Help Call or email us if you need help. SCD COVID-19 health advisories from SCDAA's MARAC Virtual Fall Camp Apply to North Star Reach's virtual fall camp SAFER Sickle Cell 911 We're keeping patients SAFE(R) by working with physicians to implement guideline-based care. Feb 29th Treatment Workshop Dr. Shurney and Dr. Z provided a day of great info at our Treatment Workshop! Ask Your Advocate to Speak Up! Learn more about your rights as a patient with these useful resources from The Joint Commission. CDC SCD Opioid Clarification Graphic In Feb. 2019, the CDC issued a clarification of its opioid guidelines as related to sickle cell. Those guidelines were not intended for the management of SCD and medical professionals should refer to NIH NHLBI guidelines for proper administration of narcotics. SCDAA-MI provides education, assistance, and advocacy for individuals living with and families affected by sickle cell disease. Our services are available throughout Michigan and span lifetime needs. OPPORTUNITIES TO LEARN - SHARE - DISCOVER SICKLE SABBATH ANY SUNDAY STATE OF SICKLE CELL DISEASE EXPLORE TREATMENTS WAYS TO ENGAGE WITH SCDAA-MI NEWS & MEDIA SPONSORS & ALLIANCES ADVOCACY & LEGISLATION WE'RE NOW WORKING REMOTELY TO HELP PROTECT OUR COMMUNITY. PLEASE CALL FOR ASSISTANCE. THANK YOU! DETROIT OFFICE 18516 James Couzens Fwy Detroit, MI 48235 Mon - Fri: 9 a.m. - 5 p.m. Special Event Hours as Posted CONTACT US Detroit/SE Mich: (313) 864-4406 or ( 800) 842-0973 Children's Hospital SC Clinic: (313) 745-5613 Sickle Cell Trait Counseling: (313) 595-0280 School/Job Assistance: (313) 595-0541 Email: info@scdaami.org SATELLITE OFFICES Adult Clinic Caseworker at DMC: (313) 864-4406 Benton Harbor/Kalamazoo Area: (313) 505-4081 Grand Rapids/Muskegon Area: Jackson/Lansing Area: (800) 842-0973 (616) 788-9816 Saginaw/Flint Area: (989) 372-0256 THANK YOU TO OUR FUNDERS & SPONSORS Mostrar Mais
Ways 2Give | -scdaami-
WAYS TO GIVE Donate online here Host a Facebook fundraiser: Birthdays, anniversaries, holidays, Mondays - any day is a good day to around our cause. rally your friends Facebook Amazon: By selecting the Sickle Cell Disease Association of America - Michigan Chapter as your charitable recipient, Amazon will donate .5% of every eligible purchase to SCDAA-MI. All you have to do is shop. Amazon handles the rest. Give while you shop, through Amazon Smile. Text to give: $5 will be added to your phone bill. (Message and data rates apply.) Text FIVE to 52000. Kroger: Enter SICKLE CELL DISEASE ASSOICATION OF AMERICA MI CHPT or 91452. Individual purchases will begin counting towards your organization within 7-10 days of registering the individual rewards cards on-line. Every time you shop for groceries and swipe your card, SCDAA-MI automatically starts earning a rebate. Kroger limits your quarterly household contribution to $300. Register your Kroger Rewards Card online at Kroger.com/communityrewards (Sorry, but that is how it's spelled on that site!) By check or money order, mail to: SCDAAMI, 18516 James Couzens Fwy, Detroit MI 48235 CORPORATE PARTNERSHIPS Donating to SCDAA-MI benefits the thousands of individuals who depend on our education, advocacy and awareness efforts. It also benefits your corporate responsibility goals. We’re currently recruiting sponsors at the Charles H. Wright Museum of African History from 9 a.m. - noon. for our on Sept. 19 2020 Sickle Cell Matters Virtual Walk , Co-host of "Sunday Morning Inspiration" on MIX 92.3 FM and Professor of English Literature at the University of Michigan-Dearborn. Our Honorary Chair is Deborah Smith Pollard , Pediatric Oncologist/Hematologist, Comprehensive Sickle Cell Clinic at Children’s Hospital of Michigan, and known to many as "Dr. Z". Our Honorary Co-Chair for the event is Dr. Ahmar Zaidi Many of our 2020 Sickle Cell Matters Virtual Walk sponsorships provide year-round engagement opportunities for companies and employees. for more information. Click here We're also looking for community partners to serve on our Sickle Cell Matters Walk Host Committee. for information. Click here For more information, contact Stefanie Worth, Director of Operations & Outreach at 313-864.4406, ext. 111. WHY DONATE? With nearly 3,000 people in Michigan living with sickle cell and approximately 1,600 of those people living in the metro Detroit area, individuals, their families, and the community at large. our programs and services impact Sickle cell affects three times as many people as cystic fibrosis in the U.S., yet receives approximately one-third the funding. Your support helps provide year-round education for physicians, patients and caregivers; appropriate medical care, trait testing campaigns, self-sustainability work, and more. Modern medicine has the capacity to help people with sickle cell thrive. Individuals living with the condition want improved quality of life and it’s our mission to make that happen. ways 2give QUICK ACCESS MENU DONATE FACEBOOK AMAZON KROGER SPONSORSHIPS QUESTIONS?
Get Involved Overview | -scdaami-
get involved Together our tenacity and commitment have greatly brightened the future for sickle cell: comprehensive pediatric care has become a medical standard throughout most of the U.S., allowing patients to pursue college educations, take on dream careers, marry and welcome extended families. At the same time, many challenges remain: awareness among the adult medical community lags behind pediatric expertise at the expense of patient health. Sickle cell still bears the weight of stigma attached to systemic discrimination. While research is on the uptick, treatments are limited. There is no universal cure. Your support matters in our quest for consciousness, equity, and a cure. Please join us today. DONATE The Sickle Cell Disease Association of America - Michigan Chapter thrives on the support of dedicated patients/clients, staff, volunteers, , and community partners funders, sponsors, donors . We've remained committed to our mission of improving the lives of people living with sickle cell disease for 48 years. . Give today ADVOCATE This is an exciting time for the sickle cell community as new treatments have recently become available and interest in research to find a cure has spiked. Yet, insurance hindrances, misplaced opioid restrictions, and ongoing systemic discrimination continue to block access to proper care and threaten the lives of patients. Raise your voice for sickle cell. VOLUNTEER There are always volunteer opportunities at SCDAA-MI for assistance at our annual Sickle Cell Matters Walk, encouraging an increased social media presence, office help, committees, and more. Complete our to let us know you're interested, and we'll contact you when opportunities arise. volunteer form
Donation Page | -scdaami-
Your gift to the Sickle Cell Disease Association of America - Michigan Chapter helps ensure that counseling, educational, medical, and basic needs services are addressed for people with sickle cell. By supporting our work, you help improve lives. Thank you for your support! donation page Donate Now How much are you donating? $15 $25 $50 $75 $100 Other First Name Last Name I'd like this donation to remain anonymous Company Street Address City, STATE Zip Email Address Donating in honor of: DONATE Thank you for helping us improve the lives of people with sickle cell!
Donation Confirmation | -scdaami-
Your gift to the Sickle Cell Disease Association of America - Michigan Chapter helps ensure that counseling, educational, medical, and basic needs services are addressed for people with sickle cell. By supporting our work, you help improve lives. If you chose to make your gift anonymously, your name will not be listed in any materials where we might recognize donors. You will receive electronic receipts from PayPal Giving Fund. We will email a gift acknowledgement to the name and email address you provided. Thank you for your support! donation confirmation
Our Donors | -scdaami-
2018-19 SCDAA-MI Funders, Sponsors and Major Donors* The Aaron Ardoin Foundation Alpha Phi Alpha/Cass Technical High School Berkley Bears Student Leadership City of Detroit Planning and Development Department Community Health Charities Cradle Genomics Barbara Cushing M.D. Cynthia Coles Circle of Friendship Baptist Church Emmaus Medical Inc. Federal Health Resource and Services Administration (HRSA) Fifth Third Bank First Independence Bank Functional Fluidics Global Blood Therapeutics Michigan Department of Health and Human Services North Star Reach On-Time Transportation Pi Delta Psi Pfizer Sanofi Genzyme Sickle Cell Disease Association of America SOS Graphics Susume Inoue M.D. Toyota Versiti Blood Center of Michigan Wayne County Community College District *Major Donors are individuals who give $500 or more We are deeply grateful for the generous support of our funders, sponsors and donors. SCDAA-MI is committed to continue delivering dedicated comprehensive services with passion and compassion to help people with sickle cell live their best lives possible as we enlighten the medical establishment and keep reaching for a cure. our donors
Our Partners | -scdaami-
OUR PARTNERS SCDAA Member Organization As a Member Organization of Sickle Cell Disease Association of America, we are positioned to work with other local organizations and with the National office to execute events, fundraisers, programs, and projects. For more information about our national agency, click here (insert logo and link to website). Our achievements are possible because of the continued commitment of our dedicated staff, Board of Directors, and other volunteers. We also wish to acknowledge the financial support from the state of Michigan Department of Health and Human Services, Federal Health Resource [i]and Services Administration (HRSA), City of Detroit- Planning & Development Department and the many agencies, organizations and individuals which have enabled us to provide free services for our clients. The Cynthia Coles Circle of Friendship Baptist Church has been a steadfast supporter of our organization as well as Community Health Charities. We could not have met the challenges presented by sickle cell conditions without the assistance we have received from the total community. We are deeply grateful for your generous support over the years and we intend to continue to be worthy of it. Our promise is to continue delivering dedicated comprehensive services, with true compassion. CALL TO ACTION If you would like to join us in improving the lives of individuals living with sickle cell disease, please take a moment to send a tax deductible contribution. Thank you!
2020 Walk Day | -scdaami-
The Sickle Cell Matters Virtual Walk program starts at 10 :15 a.m. EST here and on Facebook @SickleCellMichigan! YOUR GUIDE TO THE daY* *Program times are approximate You can still donate to the 2020 Sickle Cell Matters Virtual Walk through September 30th. We appreciate your support! Donate to the cause or a team Click the image to download a PDF version of the day's agenda. 10:15 - WELCOME REMARKS SCDAA-MI CEO & Medical Director, Dr. Wanda Whitten-Shurney Honorary Chair, Deborah Smith-Pollard Honorary C-Chair, Dr. Ahmar Zaidi, "Dr. Z." 10:21 - #SICKLESLIDE Join Dr. Shurney and the staff of the Bottomless Toy Chest in the #SickleSlide 10:24 - WARRIOR RECOGNITIONS Tribute to Fallen Warriors - Those We've Lost 2020 Graduation Open House Celebration Salute to Legacy Warriors - Those 40 & Over 10:37 - MEET OUR SPONSORS Greetings from Medunik USA & What You Should Know About Sickle Cell Anemia Wayne County Community College District Tour Emmaus Life Sciences - About Endari 11:14 - PRODUCTS & SERVICES Pfizer - Functional Fluidics Sick Cells - Versiti - Terumo 11:16 - GIVEAWAYS & AWARDS 1st & 2nd Place Fundraising Teams (as of 9/12) Most Team Members (as of 9/12) T-Shirt/Poster Design Contest Winner Giveaway Winner From All Participants (as of 9/5 11:20 - TIME TO MOVE! Now's the time to move how you choose. Take your walk, do a little yoga, or head out to your ballot box to drop off your election ballot. Be sure to post your photos u sing #SickleCellMattersWalkMI #SickleCellMatters #SickleCellLivesMatter Dr. Wanda Whitten-Shurney Deborah Smith-Pollard Dr. Ahmar Zaidi Thank you for making our 2020 Sickle Cell Matters Virtual Walk a huge success! DONATE NOW Our 2020 Sickle Cell Matters Walk sponsors!
Sponsors | -scdaami-
Thank You Sponsors
2020 Sickle Cell Matters Walk | -scdaami-
Donate/Join/Fundraise Since the Walk is now virtual, registration is optional. You can turn your registration fee into a donation, join/create a team or become a fundraiser. Team Set Up Once you create a team, you'll get an email for page set up. We also have step-by-step instructions here to personalize your page. Sponsor Info Your company sponsorship heightens the visibility of your commitment to social responsibility. The return on investment benefits us all. Vendor/Exhibitor This year we're offering two vendor experiences: Both provide virtual promotion, one also offers limited sponsor benefits. Legacy Warriors Are you a sickle cell warrior who's 40 or older? We invite you to join our Legacy Salute! Sign up here by 9/5 to be included. Click here to join in the virtual walk program on Sept. 19th Our 2020 Sickle Cell Matters Walk will still raise consciousness around the most common genetic disorder in the U.S. But this year it'll happen from wherever you are. More than just an awareness event, we join efforts to raise funds, promote the need for additional research, and combat medical inequities often faced by sickle cell patients. We still need your support. Register, donate, sign up to fundraise, or start a team ! today Virtual Walk Day Agenda Join us Saturday, Sept. 19 on our Facebook page @sicklecellmichigan for a morning filled with celebration beginning at 10 a.m. (Lineup subject to change) Welcome remarks #WarriorsWipeItDown & #SickleSlide Tribute to Fallen Warriors 2020 Graduation Virtual Open House Salute to Legacy Warriors Sponsor Showcase – GBT, Novartis, Medunik USA Vendor Slideshow Award presentations Let’s Move! Lead volunteers & key supporters Deborah Smith Pollard Honorary Walk Chair Deborah Smith Pollard , is co-host of "Sunday Morning Inspiration" on MIX 92.3 FM and Professor of English Literature at the University of Michigan-Dearborn. Read More Dr. Ahmar Zaidi Honorary Walk Co-Chair is a Pediatric Oncologist/Hematologist, in the Comprehensive Sickle Cell Clinic at Children’s Hospital of Michigan, and nationally known SCD advocate. "Dr. Z," Ahma Zaidi Read More You Sponsors & Vendors helps take our walk from good to great and enables us to changes lives and create possibilities - especially in times like these. Your company Read More 2020 Sickle Cell Matters Walk Sponsors Diamond Presenting Sponsor Silver Sponsors Copper Sponsor Pfizer Functional Fluidics Check our leaderboard frequently to see how your campaign is doing and what the competition is up to. For additional information, please contact the following SCDAA-MI staff for specific assistance or call (313) 864-4406: Registration or team setup - email Kristal Johnson Sponsorships - email Stefanie Worth Vendor Information - email Tracie Conic