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Thank you 2023 Sponsors for helping us reach our goal!! Sickle cell is a complex biopsychosocial condition affecting every blood vessel, organ, and system in the body. While its severity impacts each individual uniquely, sickle cell’s most common visible presentation is excruciating, unpredictable pain. However, the condition’s less visible complications of continual hemolytic anemia and vascular and organ damage are silent, but life-shortening, ramifications suffered by every individual with sickle cell. To play, press and hold the enter key. To stop, release the enter key. SCDAA-MI provides education, assistance, and advocacy for individuals living with and families affected by sickle cell disease. Our services are available throughout Michigan and span lifetime needs. OPPORTUNITIES TO LEARN - SHARE - DISCOVER CHEAT CODES STATE OF SICKLE CELL DISEASE EXPLORE TREATMENTS WAYS TO ENGAGE WITH SCDAA-MI NEWS & MEDIA SPONSORS & ALLIANCES QUESTIONS ABOUT HYDROXYUREA WE'RE NOW WORKING REMOTELY TO HELP PROTECT OUR COMMUNITY. PLEASE CALL FOR ASSISTANCE. THANK YOU! DETROIT OFFICE 18516 James Couzens Fwy Detroit, MI 48235 Mon - Fri: 9 a.m. - 5 p.m. ​​Special Event Hours as Posted CONTACT US Detroit/SE Mich: (313) 864-4406 or ( 800) 842-0973 Children's Hospital SC Clinic: (313) 745-5613 Sickle Cell Trait Counseling: (313) 595-0280 School/Job Assistance: (313) 595-0541 Email: info@scdaami.org SATELLITE OFFICES Adult Clinic Caseworker: (313) 864-4406 Benton Harbor/Kalamazoo Area: (269) 927-5629 Grand Rapids/Muskegon Area: (616) 788-9816 Jackson/Lansing Area: (517) 249-3528 Saginaw/Flint Area: (989) 372-0256

If you inherit only one sickle hemoglobin gene from a parent you will carry the sickle cell trait. While the trait was once thought to be innocuous, in recent years more has been learned about carriers. People with the trait are more likely to suffer from conditions such as urinary tract infections or blood in the urine. Even athletes with sickle cell trait are now advised to take special precautions. sickle cell trait Sickle Cell Trait Facts ​ In some people the red blood cells can take on the shape of a farmer’s sickle. If you are born with this gene from one parent you have SICKLE CELL TRAIT. If you are born with this gene from both parents you have SICKLE CELL DISEASE. A person with sickle cell DISEASE has sickle cells in the blood stream which can cause health problems Such as pain, infection and anemia. A person with sickle cell TRAIT does not have sickle cells in the blood stream and does not have a disease. They're considered to be a carrier. If both parents have sickle cell TRAIT, each time a child is born there is a 25% (1 in 4) chance the child will have sickle cell DISEASE. This doesn't mean that if you have four children, one of them will have a chance of being born with sickle cell disease. It means that each child has a 25% chance of being born with the disease. There are two other fairly common traits that can also result in having a child with sickle cell disease: h emoglobin C trait and thalassemia trait. ​ Since you do not get sick from any of these traits, you may have one of them and not know it. People of childbearing age should know if they have any of these traits so that they can make informed decisions regarding family planning. ​ Know your trait status! View and download the full infographic here . SCDAA-MI offers free testing for sickle cell trait and sickle cell disease at its office: 18516 James Couzens Fwy, Detroit, MI 48235. Appointments and walk-ins are welcome. Call or contact us for more information. More info on the CDC's sickle cell trait site. Learn more about the NCAA and sickle cell trait

get involved Together our tenacity and commitment have greatly brightened the future for sickle cell: comprehensive pediatric care has become a medical standard throughout most of the U.S., allowing patients to pursue college educations, take on dream careers, marry and welcome extended families. At the same time, many challenges remain: awareness among the adult medical community lags behind pediatric expertise at the expense of patient health. Sickle cell still bears the weight of stigma attached to systemic discrimination. While research is on the uptick, treatments are limited. There is no universal cure. ​ Your support matters in our quest for consciousness, equity, and a cure. Please join us today. DONATE The Sickle Cell Disease Association of America - Michigan Chapter thrives on the support of dedicated patients/clients, staff, volunteers, funders, sponsors, donors , and community partners . We've remained committed to our mission of improving the lives of people living with sickle cell disease for 48 years. Give today . ADVOCATE This is an exciting time for the sickle cell community as new treatments have recently become available and interest in research to find a cure has spiked. Yet, insurance hindrances, misplaced opioid restrictions, and ongoing systemic discrimination continue to block access to proper care and threaten the lives of patients. Raise your voice for sickle cell. VOLUNTEER There are always volunteer opportunities at SCDAA-MI for assistance at our annual Sickle Cell Matters Walk, encouraging an increased social media presence, office help, committees, and more. ​ Complete our volunteer form to let us know you're interested, and we'll contact you when opportunities arise.

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about us The Sickle Cell Disease Association of America - Michigan Chapter has been a leader in the sickle cell community since 1971. We are committed to improving the lives of people with sickle cell by keeping our mission at the center of everything we do. ​ OUR HISTORY SICKLE CELL CENTER Our success all started with the vision of Dr. Charles F. Whitten. His daughter Dr. Wanda Whitten-Shurney continues the work. Read More > OUR IMPACT EVERYBODY COUNTS Numbers, numbers, numbers. But here at SCDAA-MI, every statistic represents a real person we fight for every day. Read More > OUR BOARD LEADERSHIP MATTERS Our board members provide mission and operational oversight with passion, dedication, and expertise. Read More > OUR STAFF 200 YEARS The SCDAA-MI staff brings more than 200 years of experience to its mission of changing the world of sickle cell. Read More >

Career Opportunities at SCDAA-MI The Sickle Cell Disease Association of America – Michigan Chapter (SCDAA-MI), offers education, assistance, and advocacy to individuals living with and families affected by sickle cell disease. SCDAAMI provides counseling, support groups, referrals for financial and medical help, and connects students and job seekers with school, college and employment assistance, in addition to raising public awareness and sending children to summer camp each year. The agency also coordinates newborn screening for babies born in Michigan and conducts on-site blood testing to diagnose sickle cell trait and disease. All SCDAA-MI employees play a vital role in achieving our mission to improve the quality of life for people with sickle cell. Please click on the job availability below to join our team! ​ Position Available: ​ We do not have no available employment positions at this time. ​ ​ ​ The Sickle Cell Disease Association of America - Michigan Chapter is an Equal Opportunity Employer. jobs/ careers

2020 Vendor & Exhibitor Form Donate/Join/Fundraise Since the Walk is now virtual, registration is optional. You can turn your registration fee into a donation, join/create a team or become a fundraiser. Team Set Up Once you create a team, you'll get an email for page set up. We also have step-by-step instructions here to personalize your page. Sponsor Info Your company sponsorship heightens the visibility of your commitment to social responsibility. The return on investment benefits us all. Vendor/Exhibitor This year we're offering two vendor experiences: Both provide virtual promotion, one also offers limited sponsor benefits. Legacy Warriors Are you a sickle cell warrior who's 40 or older? We invite you to join our Legacy Salute! Sign up here by 9/5 to be included. Vendor and Exhibitor reservations are accepted on a first come-first served basis. Check or money order reservations must be mailed to be received by our office no later than September 10, 2020. Online reservations using a bank account or credit card can be made on this page up until September 15, 2020. Please make your display selection: $100 - Vendor $500 - Exhibitor Vendor & Exhibitor Form Your support helps us change lives! Company/Organization Contact Name Address City, State Zip Code Email Address Phone Web Site URL and company/product description Service area (check all that apply) Health & Wellness Financial Education Retail Youth Development Beauty & Fashion Other Please indicate your display choice: Exhibitor experience - $125 Vendor experience - $50 Nonprofit supporter - $0 For nonprofit orders, please see instructions. SUBMIT YOUR ORDER Clicking submit will take you to the payment page. Exhibitor: $125 Virtual recognition to promote your business or organization: (1) pre- and (1) post-event social media mention; inclusion in our day-of online vendor presentation with business description and link included in Facebook post; listing on our web site’s Walk sponsor page; (1) business card ad on our web site's "classified" page; (1) business card ad in our fall e-newsletter. ​ Vendor: $50 Virtual recognition to promote your business or organization: inclusion in our day-of online vendor presentation, name listing on our web site's "classified" page; (1) business card ad in our fall e-newsletter. Nonprofit: FREE Virtual recognition to promote your business or organization: name listing on our web site's "classified" page; (1) business card ad in our fall e-newsletter. You must complete your reservation manually and mail (see address below) or email along with a copy of your 501(c)3 IRS Determination Letter. ​ Please note the following: ​ Check or money order reservations must be received in our office by September 10, 2020. ​ Make check or money order payable to SCDAA-MI. Mail to: SCDAA-Michigan, ATTN: Tracie Conic - Walk Vendor, 18516 James Couzens Fwy, Detroit, MI 48235 ​ Online reservations using a bank account or credit card can be made through this page up until September 15, 2020. ​ Questions? Please email Tracie Conic or call (313) 864-4406. Thank you for your support!

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Catch up on news and information from the SCDAA-MI E- newsletters Read the latest news SUBSCRIBE TO OUR E-NEWS September 2020 Special Edition Read web version ​ Download PDF Summer 2020 (August) Read web version ​ Download PDF World Sickle Cell Day Alert Read web version ​ Download PDF Spring 2020 (April) Read web version ​ Download PDF January 2020 (Winter) Read web version ​ Download PDF November 2019 Read web version ​ Download PDF

An archive of news and media from SCDAA-MI news archive World Sickle Cell Day On Wednesday, June 19, GBT hosted guest speaker Dr. Wanda Whitten-Shurney, the CEO and Medical Director of the Michigan chapter of the Sickle Cell Disease Association of America (SCDAA), as part of its World Sickle Cell Day (WSCD) activities. As part of GBT's support, employees were encouraged to wear their “Hope” T-shirts provided by GBT and designed by artist and SCD activist, Hertz Nazaire. Blood Drive Pictured Michelle Huckaby, SCDAAMI Community Health Worker, Kristal Cobb, SCDAAMI Administrative Assistant, Heather and Tracey Moorehead, Board Members, Anastasia Worthy, SCDAAMI Youth Ambassador and Kym Worthy, SCDAAMI Board Chair. Myths about Sickle Cell ​ Dr. Wanda Whitten-Shurney, CEO and Medical Director of the Sickle Cell Disease Association of America – Michigan Chapter and former SCDAA-MI board member Amyre Makupson discuss myths surrounding sickle cell and facts of the disease .