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Career Opportunities at SCDAA-MI The Sickle Cell Disease Association of America – Michigan Chapter (SCDAA-MI), offers education, assistance, and advocacy to individuals living with and families affected by sickle cell disease. SCDAAMI provides counseling, support groups, referrals for financial and medical help, and connects students and job seekers with school, college and employment assistance, in addition to raising public awareness and sending children to summer camp each year. The agency also coordinates newborn screening for babies born in Michigan and conducts on-site blood testing to diagnose sickle cell trait and disease. All SCDAA-MI employees play a vital role in achieving our mission to improve the quality of life for people with sickle cell. Director of Operations & Outreach ​ The Sickle Cell Disease Association of America - Michigan Chapter is an Equal Opportunity Employer. jobs/ careers

SICKLE CELL DISEASE Association of America Michigan Chapter (SCDAAMI) Enter Site Contact Us Donate

SCDAA-MI SICKLE CELL DISEASE ASSOCIATION OF AMERICA - MICHIGAN CHAPTER OUR MISSION: To maximize the quality of life of individuals living with sickle cell disease. To enable individuals with sickle cell trait to make informed decisions with respect to family planning. To provide education and testing for the general public. Sickle cell is a complex biopsychosocial condition affecting every blood vessel, organ, and system in the body. While its severity impacts each individual uniquely, sickle cell’s most common visible presentation is excruciating, unpredictable pain. However, the condition’s less visible complications of continual hemolytic anemia and vascular and organ damage are silent, but life-shortening, ramifications suffered by every individual with sickle cell. Watch the Virtual Walk program 2020 was our best fundraising walk ever! Thanks for your support! Need Help Call or email us if you need help. SCD COVID-19 health advisories from SCDAA's MARAC Virtual Fall Camp Apply to North Star Reach's virtual fall camp Feb 29th Treatment Workshop Dr. Shurney and Dr. Z provided a day of great info at our Treatment Workshop! Ask Your Advocate to Speak Up! Learn more about your rights as a patient with these useful resources from The Joint Commission. CDC SCD Opioid Clarification Graphic In Feb. 2019, the CDC issued a clarification of its opioid guidelines as related to sickle cell. Those guidelines were not intended for the management of SCD and medical professionals should refer to NIH NHLBI guidelines for proper administration of narcotics. SAFER Sickle Cell 911 We're keeping patients SAFE(R) by working with physicians to implement guideline-based care. Watch the Virtual Walk program 2020 was our best fundraising walk ever! Thanks for your support! Need Help Call or email us if you need help. SCD COVID-19 health advisories from SCDAA's MARAC Virtual Fall Camp Apply to North Star Reach's virtual fall camp Feb 29th Treatment Workshop Dr. Shurney and Dr. Z provided a day of great info at our Treatment Workshop! Ask Your Advocate to Speak Up! Learn more about your rights as a patient with these useful resources from The Joint Commission. CDC SCD Opioid Clarification Graphic In Feb. 2019, the CDC issued a clarification of its opioid guidelines as related to sickle cell. Those guidelines were not intended for the management of SCD and medical professionals should refer to NIH NHLBI guidelines for proper administration of narcotics. SAFER Sickle Cell 911 We're keeping patients SAFE(R) by working with physicians to implement guideline-based care. SCDAA-MI provides education, assistance, and advocacy for individuals living with and families affected by sickle cell disease. Our services are available throughout Michigan and span lifetime needs. OPPORTUNITIES TO LEARN - SHARE - DISCOVER SICKLE SABBATH ANY SUNDAY STATE OF SICKLE CELL DISEASE EXPLORE TREATMENTS WAYS TO ENGAGE WITH SCDAA-MI NEWS & MEDIA SPONSORS & ALLIANCES QUESTIONS ABOUT HYDROXYUREA WE'RE NOW WORKING REMOTELY TO HELP PROTECT OUR COMMUNITY. PLEASE CALL FOR ASSISTANCE. THANK YOU! DETROIT OFFICE 18516 James Couzens Fwy Detroit, MI 48235 Mon - Fri: 9 a.m. - 5 p.m. ​​Special Event Hours as Posted CONTACT US Detroit/SE Mich: (313) 864-4406 or ( 800) 842-0973 Children's Hospital SC Clinic: (313) 745-5613 Sickle Cell Trait Counseling: (313) 595-0280 School/Job Assistance: (313) 595-0541 Email: info@scdaami.org SATELLITE OFFICES Adult Clinic Caseworker at DMC: (313) 864-4406 Benton Harbor/Kalamazoo Area: (313) 505-4081 Grand Rapids/Muskegon Area: Jackson/Lansing Area: (800) 842-0973 (616) 788-9816 Saginaw/Flint Area: (989) 372-0256 THANK YOU TO OUR FUNDERS & SPONSORS Mostrar Mais

2019 holidays Camp Cancellation2 WSU 02282020 Whitten-Shurney MD Register2 GivingTuesdayNow Walk promo IMG_0946 SCDAAMI Stabenow meeting Ahmar TEDx IMG_0943 iseeu events Mark your calendar and join us for fun, educational, advocacy, and celebratory events throughout the year. (Virtual for now, of course.) SCDAA-MI Upcoming Events Download the full calendar of events . here Events subject to change. A weekend of awareness and action for 2020 World Sickle Cell Day FRIDAY, JUNE 19: #MaskUp4SickleCell for World Sickle Cell Day Grab a red mask and get ready to #MaskUp4SickleCell on World Sickle Cell Day. This is a day to create awareness and inspire action among individuals with sickle cell and the allies in our community. On Friday, June 19, put on your red mask (whatever red cloth you have handy to use), and head over to Facebook to post a selfie. Have fun and edit your photo with a note about what your mask represents for your life with sickle cell and then write a post about what's #BehindTheMask . Invite your friends and family to join in supporting the cause by posting themselves in red masks, too. We'll have a special frame you can use on Facebook. You can also take a screenshot of that photo to post on Instagram, Twitter and SnapChat. Be sure to tag @sicklecellmichigan so we can share your post. Watch our next week for the latest updates and how to join the full campaign. You can also to download a step-by-step guide on how to participate. social media pages click here SATURDAY, JUNE 20TH: Virtual Graduation Open House Congratulations Class of 2020! We're recognizing our graduating sickle cell Warriors with a Virtual Open House on Saturday, June 20 as part of our World Sickle Cell Day weekend. Do you know someone who should be included? To be eligible, the student must have sickle cell, live in Michigan and be a December 2019 or Spring/Summer 2020 graduate from high school, college or trade school. Children of individuals with sickle cell who are graduating within these time frames are also eligible. The graduate will need to complete an information form and send us photos no later than midnight, Sunday, May 31. For all the details, please visit our page. Spread the word! Class of 2020 SUNDAY, JUNE 21: Sickle Sabbath We invite you to mark our first Sickle Sabbath in your place of worship on Saturday, June 20, or Sunday June 21 (depending on when you observe your sabbath). While sickle cell disease predominately affects people of African, Latino and Middle Eastern descent, it can affect anyone of any ethnicity or nationality. All faiths and denominations are encouraged to join us in educating their congregations about sickle cell disease and the importance of knowing your sickle cell trait status. Sickle Sabbath flyers, fact sheets and a social media graphic are available on our web site at . Participation is free, however, love offerings that day are welcome to support our education, outreach and advocacy services. www.scdaami.org/sicklesabbath To join the event, talk with your worship leader or health ministry and share the Sickle Sabbath materials for distribution to your congregation members. We also encourage you to post and share the information on social media pages. For additional information, please or call 313.864.4406. email us Have questions? Need info? Want to send an idea for an educational topic? Contact us at or 313.864.4406. info@scdaami.org

Your gift to the Sickle Cell Disease Association of America - Michigan Chapter helps ensure that counseling, educational, medical, and basic needs services are addressed for people with sickle cell. By supporting our work, you help improve lives. Thank you for your support! donation page Donate Now How much are you donating? $15 $25 $50 $75 $100 Other First Name Last Name I'd like this donation to remain anonymous Company Street Address City, STATE Zip Email Address Donating in honor of: DONATE Thank you for helping us improve the lives of people with sickle cell!

Sponsor Information Donate/Join/Fundraise Since the Walk is now virtual, registration is optional. You can turn your registration fee into a donation, join/create a team or become a fundraiser. Team Set Up Once you create a team, you'll get an email for page set up. We also have step-by-step instructions here to personalize your page. Sponsor Info Your company sponsorship heightens the visibility of your commitment to social responsibility. The return on investment benefits us all. Vendor/Exhibitor This year we're offering two vendor experiences: Both provide virtual promotion, one also offers limited sponsor benefits. Legacy Warriors Are you a sickle cell warrior who's 40 or older? We invite you to join our Legacy Salute! Sign up here by 9/5 to be included. Our 2020 Sickle Cell Matters Virtual Walk Sponsors Diamond Presenting Silver Copper Pfizer Donating to SCDAA-MI benefits the thousands of individuals who depend on our education, advocacy and awareness efforts. It also benefits your corporate responsibility goals. Honorary Chair: Deborah Smith Pollard Co-host of "Sunday Morning Inspiration" on MIX 92.3 FM and Professor of English Literature at the University of Michigan-Dearborn. Honorary Co-Chair: Dr. Ahmar Zaidi Pediatric Oncologist/ Hematologist, Comprehensive Sickle Cell Clinic at Children’s Hospital of Michigan, and known to many as "Dr. Z". 2020 Sickle Cell Matters Walk sponsorships help provide educational and career resources to students and adults, ensure quality counseling services for navigating life with this chronic condition, offer a bridge to primary and specialty care for underserved individuals, support low-income clients in need of emergency financial assistance to meet basic needs, and more. Many of our sponsorships provide year-round engagement opportunities for companies and employees. to download the sponsorship packet. Click here We're also looking for community partners to serve on our Sickle Cell Matters Walk Host Committee. to download the interest form. Click here For more information, contact , Director of Operations & Outreach at 313-864-4406. Stefanie Worth

media Keep up with SCDAA-MI news, articles and information from a variety of outlets on issues affecting sickle cell, and videos and webinars to keep you up-to-date about what's happening in the #sicklecell community. ​ SCDAA-MI OUT & ABOUT SCDAA-MI World Sickle Cell Day press release SCDAA-MI ANNOUNCES SAFE(R) INITIATIVE TO IMPROVE EMERGENCY SICKLE CELL CARE Effort aims to assist medical community in proper treatment of long-misunderstood disease ​ February 26, 2020 Read more ​ provides medical professionals with quick access to an online portal at that provides clinical practice guidelines for sickle cell established by the National Institutes of Health, sickle cell-specific opioid guidance from the Centers for Disease Control, as well as best practices and recommendations from the American Society of Hematology and other leading experts in sickle cell treatment. SAFE(R) SCDAAMI.org/SickleCell911 NHLBI Speaker "Thank you for having me alongside these devoted advocates as a panelist for the “What is a Meaningful Cure?” panel discussion hosted by Dr. . Thanks for the pic!! — with , and at ." National Heart, Lung, and Blood Institute (NHLBI) Wanda Whitten-Shurney #CureSCI #sicklecell Teonna Woolford Velvet Brown-Watts André Marcel Harris Cassandra Trimnell Hilton Washington DC/Rockville Hotel and Executive Meeting Center NEWS FROM AROUND THE COMMUNITY Toledo's Promedica Hospital has added an adult sickle cell clinic, the first of its kind in northwest Toledo. - WATCH & READ Get the clinic's info here Could gene therapy cure sickle cell anemia? - WATCH FDA approves first targeted therapy to treat patients with painful complication of sickle cell disease - READ FDA Approves Oxbryta™ (Voxelotor), the First Medicine Specifically Targeting the Root Cause of Sickle Cell Disease - READ Sickle Cell Disease Treatment Has Oklahoma Roots - READ Patient & caregiver focused videos All Categories Play Video Play Video 10:35 Sickle Cell Disease: a battle for equality, justice and respect | Ahmar Zaidi | TEDxDetroit What led a 46 year old Haitian artist to being kicked out of the hospital in the dead of winter? What led him to joblessness and homelessness? Part of the answer was in his blood...but most of the answer is us. Dr. Ahmar Zaidi is a pediatric hematologist who focuses on the care of people with sickle cell disease. He works at the Children’s Hospital of Michigan and is involved in research looking at pain in sickle cell disease patients. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx Play Video Play Video 03:54 Hour Detroit’s Excellence in Care Award Sharada Sarnaik, M.D., Pediatric Hematologist/Oncologists at Children’s Hospital of Michigan presented Hour Detroit’s Excellence in Care Award Play Video Play Video 07:12 SCDAAMI Questions about Hydroxyurea OUR THEME: Together we can make a difference and "break the sickle cycle" OUR MISSION To maximize the life potential of individuals living with sickle cell disease To enable individuals with sickle cell trait to make informed decisions with respect to family planning. To provide education and testing for the general public Play Video Play Video 10:16 World Sickle Cell Day | American Black Journal Clip Air date: 6/19/16. Three women on the front lines in the battle against sickle cell disease: Wayne County Prosecutor Kym Worthy, who is Board Chair of the Sickle Cell Disease Association of America’s Michigan chapter; Dr. Wanda Whitten-Shurney, a pediatrician at Children’s Hospital of Michigan; and Anastasia Worthy, Youth Ambassador of the Michigan Chapter of the Sickle Cell Disease Association of America. Episode 4437/Segment 1. Play Video Play Video 02:00 2018 Access to Care Summit Educating and Empowering Sickle Cell Patients 2018 Access to Care Summit: Educating and Empowering Sickle Cell Patients. Original published link: https://www.youtube.com/watch?v=cEHsyeTbYT8&t=9s Play Video Play Video 00:31 Annual SCD Therapeutics Conference Experience Wanda Whitten Shurney, M D Wanda Whitten-Shurney, M.D., the CEO and medical director of SCDAA – Michigan Chapter, explains the value that the annual Sickle Cell Disease Therapeutics Conference offers to the SCD community in this short video. To learn more, visit scdconference.com. Original published link: https://www.youtube.com/watch?v=IYP1YkA0W3A Play Video Play Video 05:48 Sickle cell disease: Why is it hard to talk about our pain? BBC Stories Sickle cell disease is a serious and lifelong health condition that predominantly affects people from African or Caribbean backgrounds. Symptoms include bouts of pain, strokes, organ failure, and complications that can result in reduced life expectancy. Some consider it a 'silent illness' as those who have the condition rarely speak about it or the pain that they live with. We speak to 25 year-old Chris who lives with the disease and started his own initiative that aims to create conversation about the condition. Produced by: Kesewaa Browne Filmed and edited by: James Stewart Animation: Gerard Groves Commissioning Editor: Kimberley Rowell #sicklecell #sickle #bbc We are BBC Stories, a group of journalists making films, long and short, with the younger audience (18-24) in mind. The idea is to tackle issues which concern and impact this group of people. So think about anything from race and identity to mental health, money and much more. Play Video Play Video 05:07 Prodigy Talks With Real Health About His Life With Sickle Cell Anemia Hip-Hop Star Prodigy talks with Real Health editor in chief Kate Ferguson about his life with sickle cell anemia.

2020 Virtual Graduation Open House SCDAA-MI is recognizing our graduating sickle cell warriors with a Virtual Open House on Saturday, June 20th as part of our World Sickle Cell Day weekend. Be sure to click the video to unmute the sound! We're proud of each of you! How to participate Eligibility: You must be an individual with sickle cell living in Michigan and a December 2019 or Spring/Summer 2020 graduate from high school, college or trade school. Children of individuals with sickle cell who are graduating within these time frames are also eligible. Here’s how you can join the celebration: ​ To help you prepare your answers, the form asks for your name, address, email, phone number, graduation date, school or college, degree, your plans after graduation (50 words or less), something you learned that you think could help another student with sickle cell (50 words or less), and optional questions, including any honors/awards/scholarships you earned, a song or motto that best describes you, a favorite affirmation or quote that motivates or inspires you, and social media links to any other school or family celebrations you’d like us to share on our social media. 1. to complete the 2020 Graduate Form. Click here ​ These can be casual, your formal or informal senior picture, or you in your cap and gown. Include your full name (as you’d like us to recognize you) in the body of the email. Optional: Include a 20-30 second video of yourself telling us how you thrive in spite of sickle cell and your hopes and plans for your future. 2. Email 1-2 photos of yourself to with “2020 Open House photo” in the subject line. info@scdaami.org Deadline to complete the and email us your photos (and optional video) is midnight Sunday, May 31st. No exceptions! 2020 Graduate Form The Virtual Graduation Open House video will be posted on our web site ( ) and to our social media accounts on June 20th. Facebook, Instagram and LinkedIn: @sicklecemichigan and Twitter: @sicklecellmi. www.scdaami.org If you have any questions or need additional information, please email us at or call 313-864-4406. info@scdaami.org

Sickle Cell Disease Association of America - Michigan Chapter Staff Tracie L. Conic, M.A., B.S.W ​Director of Client Services/HIPAA Compliance Officer ​ ​ Tonya Ashwood-Malone Executive Assistant/Data Manager Michael Copeland, B.S. Community Health Worker/Patient Advocate Grand Rapids/Muskegon Area ​Vilma Escamilla-Duran Program Assistant Patricia Ewell Laboratory Technologist Ben Frazier, B.S.W. Community Health Worker/Patient Advocate Saginaw/Flint Area Jesse Goodwin, Ph.D. Laboratory Director ​ Melanie Greer, B.S. Community Health Worker/Patient Advocate Benton Harbor/Kalamazoo Area ​ Darlene Hunt Maintenance/Courier Kristal Johnson-Cobb Administrative Assistant Cree King Newborn Screening Assistant ​ Jerica McBride, M.A. Education/Career Coordinator Richard Reed Finance Manager Khaleeda Robinson, B.S. Community Educator/Trait Counselor Albert Zachariah Systems Consultant Wanda Whitten-Shurney, M.D. CEO & Medical Director our staff

2020 Sickle Cell Matters Virtual Walk Sponsor & Vendor Gallery Terumo Vendors: Sick Cells and Versiti Blood Services Thank you to our 2020 Sickle Cell Matters Walk sponsors!