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Sickle Cell Disease Association of America - Michigan Chapter ​ Board of Directors Chairperson Kym L. Worthy Prosecutor, Wayne County District Jeffrey Sherbow, Esq, 1st Vice Chair, Attorney, Sherbow Law Office ​ Ms. Cheryl L. Haskett, Treasurer Finance Director & Consultant, YDB, Inc. Kathleen Neumann, Secretary Retired Regional Director, Judson Center ​ Sharada Sarnaik, M.D. , Assistant Secretary Retired Director, Comprehensive Sickle Cell Clinic Children's Hospital of Michigan ​ Sonja L. Banks, CEO, International Dyslexia Association, Inc . Barbara Cushing, M.D. Retired Pediatric Hematologist, CHM LeWanda Gipson Deputy Director, Matrix Human Services ​ Deborah Smith-Pollard, Ph.D. Associate Professor, U of M Dearborn ​ Beverly Watkins Systems Administration, Toyota ​ our board

We are deeply grateful for the generous support of our funders, sponsors and donors. SCDAA-MI is committed to continue delivering dedicated comprehensive services with passion and compassion to help people with sickle cell live their best lives possible as we enlighten the medical establishment and keep reaching for a cure. our donors

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2019 holidays Camp Cancellation2 WSU 02282020 Whitten-Shurney MD Register2 GivingTuesdayNow Walk promo IMG_0946 SCDAAMI Stabenow meeting Ahmar TEDx IMG_0943 iseeu 2022 Events Mark your calendar and join us for fun, educational, advocacy, and celebratory events throughout the year. (Virtual for now, of course.) SCDAA-MI Upcoming Events Download the full calendar of events here. Events subject to change. Have questions? Need info? Want to send an idea for an educational topic? Contact us at info@scdaami.org or 313.864.4406.

Information for our sickle cell community during the COVID-19 pandemic Information surrounding COVID-19 changes rapidly. We'll continue providing updates here. HEALTH ALERT: What our Sickle Cell Community Needs to Know About the Coronavirus (COVID-19) from SCDAA PATIENTS RETURN TO WORK LETTER PROVIDERS SCD COVID-19 REGISTRY Be prepared, not scared! We encourage sickle cell patients to follow the guidance provided in the national Sickle Cell Disease Association of America's Health Alert and for everyone to practice sanitation and cleaning practices advised by the CDC, including avoiding crowds and gatherings (events, parties, church, etc.). Be aware that the virus can live on some surfaces for 2-3 days, and on clothing for unknown periods of time . Contact your doctor if you experience symptoms or have been in contact with COVID-19. ​ Do you need medical insurance? Or a primary care physician (PCP)? Are you feeling underprepared or overwhelmed? SCDAA-MI staff is still working to meet your needs - just remotely. Please contact us with questions or for assistance at (313) 864-4406 or (800) 842-0973 or info@scdaami.org . Information about COVID-19 Michigan COVID-19 News and Information COVID-19 guidance for sickle cell from the Centers for Disease Control (CDC) COVID-19 Info from Michigan Health Departments SCDAA-MI worksite protocols If you've been exposed to COVID-19 Resources for daily life during the pandemic Click here for a (PDF ) of the guide. La guía está disponible en español . Links to food, education, mental health resources and more. Job help : Unemployment information, guidelines for returning to work, and physician letters EMERGENCY PODCAST ON SICKLE CELL AND COVID-19 ​ If you need assistance navigating any of the services or resources listed above, please contact us: Detroit/SE Mich: (313) 864-4406 or (800)-842-0973 Children's Hospital SC Clinic: (313) 745-5613 Sickle Cell Trait Counseling: (313) 451-0014 School/Job Assistance: (734) 494-2119 ​ Email: info@scdaami.org Contact our nearest satellite office: Adult Clinic Caseworker at DMC : (313) 864-4406 Benton Harbor/Kalamazoo Area: (313) 505-4081 Grand Rapids/Muskegon Area: (616) 426-9259 Jackson/Lansing Area: (800) 842-0973 Saginaw/Flint Area: (989) 372-0256

SCDAA-MI SICKLE CELL DISEASE ASSOCIATION OF AMERICA - MICHIGAN CHAPTER OUR MISSION: To maximize the quality of life of individuals living with sickle cell disease. To enable individuals with sickle cell trait to make informed decisions with respect to family planning. To provide education and testing for the general public. ​ Sickle cell is a complex biopsychosocial condition affecting every blood vessel, organ, and system in the body. While its severity impacts each individual uniquely, sickle cell’s most common visible presentation is excruciating, unpredictable pain. However, the condition’s less visible complications of continual hemolytic anemia and vascular and organ damage are silent, but life-shortening, ramifications suffered by every individual with sickle cell. To play, press and hold the enter key. To stop, release the enter key. SCDAA-MI provides education, assistance, and advocacy for individuals living with and families affected by sickle cell disease. Our services are available throughout Michigan and span lifetime needs. OPPORTUNITIES TO LEARN - SHARE - DISCOVER CHEAT CODES STATE OF SICKLE CELL DISEASE EXPLORE TREATMENTS WAYS TO ENGAGE WITH SCDAA-MI NEWS & MEDIA SPONSORS & ALLIANCES QUESTIONS ABOUT HYDROXYUREA WE'RE NOW WORKING REMOTELY TO HELP PROTECT OUR COMMUNITY. PLEASE CALL FOR ASSISTANCE. THANK YOU! DETROIT OFFICE 18516 James Couzens Fwy Detroit, MI 48235 Mon - Fri: 9 a.m. - 5 p.m. ​​Special Event Hours as Posted CONTACT US Detroit/SE Mich: (313) 864-4406 or ( 800) 842-0973 Children's Hospital SC Clinic: (313) 745-5613 Sickle Cell Trait Counseling: (313) 595-0280 School/Job Assistance: (313) 595-0541 Email: info@scdaami.org SATELLITE OFFICES Adult Clinic Caseworker: (313) 864-4406 Benton Harbor/Kalamazoo Area: (269) 927-5629 Grand Rapids/Muskegon Area: (616) 788-9816 Jackson/Lansing Area: (517) 249-3528 Saginaw/Flint Area: (989) 372-0256

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Additional resources to support your needs during the COVID-19 pandemic Food Mental Health Internet Talking With Kids Education Ways to Connect 2-1-1 Job Info Locate various community resources by zip code https://navigator.familydoctor.org/ ​ ​ ​ ​ ​ ​ ​ ​ ​ ​ Food Locate food banks by zip code https://www.feedingamerica.org/find-your-local-foodbank Several school districts are offering “grab and go” food pick up for students during the COVID-19 outbreak. These organizations are assisting as well: Gleaners Food Bank Forgotten Harvest Yad Ezra Lighthouse Food Pantry City of Detroit Food Pickup ​ Mental Health 24/7 365 Disaster Distress Hotline to assist with emotional distress due to pandemic Free online COVID-19 support group Coping With Coronavirus Anxiety - Reading from Harvard Health Be The Match® is now offering free counseling services to sickle cell warriors and their loved ones. One of their licensed social workers can provide you with one-on-one support for personal and emotional issues. Request a connection today. ​ ​ Internet & Device Access FCC program for eligible households to provide low cost telephone and broadband internet service (Michigan is a participating state) Some internet providers are offering free services to low-income families and households with students. Free Comcast Xfinity internet: Comcast Xfinity is currently offering its Internet Essentials program free for two months to new customers. The internet provider is also automatically increasing speeds for all Internet Essentials customers. Comcast Xfinity Wi-Fi hotspots are also open and free to use by anyone. Free internet for students from Charter Spectrum: Households with students K–12 or university students can sign up for a new Charter Spectrum internet account to get the first two months of internet with speeds up to 100 Mbps for free. Installation fees will be waived for those who qualify for the offer. Call 1-844-488-8395 to enroll. Spectrum Wi-Fi hotspots are also currently open and free to use. Free internet for students from Altice: Altice internet providers Suddenlink and Optimum are offering 60 days of free internet service for households with K–12 or college students. Internet speeds are up to 30 Mbps if you do not already have access to a home internet plan. To sign up, call 1-866-200-9522 if you live in an area with Optimum internet service, or call 1-888-633-0030 if you live in an area with Suddenlink internet service. Free low-income internet from Cox: Until May 12, 2020, Cox is offering the first month of its low-income internet program, Connect2Compete , for free. The internet service is also providing free phone and remote desktop support for technical support during that time. AT&T: https://www.att.com/help/covid-19/ Talking with your children about COVID-19 Talking to Children About COVID-19: National Association of School Psychologists Coping with Stress During Infectious Disease Outbreaks : Substance Abuse & Mental Health Services Administration Talking with Children about Coronavirus : CDC Helping Children Cope with Emergencies : CDC How to Talk to Your Kids About Coronavirus : PBS Kids Should children be gathering while school is not in session? CDC Recommendation : Discourage children and teens from gathering in other public places while school is dismissed to help slow the spread of COVID-19 in the community Coronavirus is Here. Should Kids Still Have Playdates ? Fatherly Magazine ​ Educational Websites and Apps Guidance and a variety of good online resources are available on the Common Sense Media website. ​ All Subjects ABC Mouse (Free 30 day trial) Khan Academy Khan Academy Kids Wonderopolis Parent Toolkit Literacy Scholastic Learn at Home Starfall Audible (free audio stories for kids) Math Code.org Tynker - Free coding courses for all grades Solve Me Puzzles - puzzles that use mathematical thinking PBS Kids Math Games Science & Social Studies Mystery Doug National Geographic Kids Science Journal for Kids ​ Enrichment Activities ​ Fun Games PBS Kids Typing.com Movement & Mindfulness Headspace Go Noodle Mindfulness Moments Virtual Tours Museum Virtual Tours NASA Images and Video Library Cranbrook Art Museum virtual tour ​ Ways to connect Adobe Connect (Free 90 day trial) Facetime Skype Google Hangouts ​ ​ ​ United Way 2-1-1 United Way for Southeast Michigan's 2-1-1 service provides referrals to programs in Wayne, Oakland, Macomb, Washtenaw, Monroe and Lapeer counties, connecting users with more than 30,000 service providers throughout the state. You can get information online at United Way 2-1-1 , or by dialing 2-1-1 (or 1-800-552-1183 ). ​ ​ Returning to Work Michigan information for employers and employees Michigan guidance for manufacturing workers returning to work Template letters from SCDAA for physicians to provide patients and caregivers ​ Back to the top Back to the top Back to the top COVID-19 Information From Michigan Health Departments ​ Berrien County here Genesee County here Ingham County here ​Kent County here ​Lenawee County here Macomb County here Michigan Department of Health & Human Services here Oakland County here Saginaw County here Washtenaw County here Wayne County here

community resources Connect to services that can help meet your basic and emergency needs Out-state resources coming soon!​ Click here for an additional list of COVID-19 specific resources. Education Mental Health Clothing Internet & Device Access Housing/Shelter Food All Services ALL SERVICES Locate various community resources by zip code https://navigator.familydoctor.org/ ​ THAW The Heat and Warmth Fund Thaw has funds available throut the Michigan Energy Assistance program. If you or someone you know needs assistance with their utilities click on the link above for more on how to get help. ​ United Way 2-1-1 United Way for Southeast Michigan's 2-1-1 service provides referrals to programs in Wayne, Oakland, Macomb, Washtenaw, Monroe and Lapeer counties, connecting users with more than 30,000 service providers throughout the state that can help with food, housing, utilities, medical bills, and more. You can get information online at United Way 2-1-1 , or by dialing 2-1-1 (or 1-800-552-1183 ). ​ FOOD ​ Locate food banks by zip code https://www.feedingamerica.org/find-your-local-foodbank Detroit-area food banks and kitchens Gleaners Food Bank of Southeastern Michigan - 2131 Beaufait St., Detroit, MI 48207, (866) 453-2637 Forgotten Harvest - A lways check location sites and bring a picture ID Yad Ezra Lighthouse Food Pantry City of Detroit Food Pickup Capuchin Soup Kitchen - (313) 579-2700 Redford Interfaith Relief - ( 313) 387.9802 CARES in Farmington Hills - (248) 474-8231 (Call to make an appointment for the food pantry.) ​ HOUSING/SHELTER Wayne County Covenant House (housing, food, basic necessities such as showers, laundry, etc) Detroit Phoenix Center (Housing, Food assistance) ​ Wayne Metro Community Action Agency Detroit Housing Commission ​Detroit Housing Wayne County Department of Health and Human Services ​Wayne (branches listed by zip code) United Community Housing Coalition , (313) 963-3310 Health Emergency Lifeline Program, 1726 Howard St., Detroit, MI 48216, (313) 832-3300 Oakland County The Sanctuary – Common Ground , 1228 S. Washington, Royal Oak, MI 48067, (248) 547-2260 ​ ​ INTERNET & DEVICE ACCESS FCC program for eligible households to provide low cost telephone and broadband internet service (Michigan is a participating state) Some internet providers are offering free services to low-income families and households with students. Free Comcast Xfinity internet: Comcast Xfinity is currently offering its Internet Essentials program free for two months to new customers. The internet provider is also automatically increasing speeds for all Internet Essentials customers. Comcast Xfinity Wi-Fi hotspots are also open and free to use by anyone. Free internet for students from Charter Spectrum: Households with students K–12 or university students can sign up for a new Charter Spectrum internet account to get the first two months of internet with speeds up to 100 Mbps for free. Installation fees will be waived for those who qualify for the offer. Call 1-844-488-8395 to enroll. Spectrum Wi-Fi hotspots are also currently open and free to use. Free internet for students from Altice : Altice internet providers Suddenlink and Optimum are offering 60 days of free internet service for households with K–12 or college students. Internet speeds are up to 30 Mbps if you do not already have access to a home internet plan. To sign up, call 1-866-200-9522 if you live in an area with Optimum internet service, or call 1-888-633-0030 if you live in an area with Suddenlink internet service. AT&T : https://www.att.com/help/covid-19/ CLOTHING ​ ● Salvation Army , Detroit: (313) 897-2914 ● Detroit Rescue Mission Ministries - (313) 366-3409 ● Christ Church of Redford - (313) 534-3436 ● Redford Interfaith Relief - (313) 387-9802 ● CARES in Farmington Hills - (248) 882-7800 ​ ​ ​ MENTAL HEALTH & SUICIDE PREVENTION ​ Michigan Mental Health Networker National Alliance on Mental Illness (NAMI) National Suicide Prevention Lifeline - 1 (800) SUICIDE (English) 1 (877) SUICIDA (Spanish) DetoxRehabs.net 24/7 Treatment call 1 (888)859-4403 ​ ​ ​ EDUCATION For FREE COLLEGE click here!!! For those of you who are interested, the Michigan Reconnect is providing free tuition at your in-district community college to earn an associate degree or Pell-eligible skill certificate if you're 25+! ​ ​ Back to the top Back to the top Back to the top SCDAA-MI’s services are available throughout Michigan and span lifetime needs. ​ For more information: Call 313-864-4406 Email info@scdaami.org Contact our nearest satellite office: Adult Clinic Caseworker at DMC: (313) 864-4406 Benton Harbor/Kalamazoo Area: (313) 505-4081 Grand Rapids/Muskegon Area: (616) 426-9259 Jackson/Lansing Area: (800) 842-0973 Saginaw/Flint Area: (989) 372-025 ​