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Covid-19 information
What Is Sickle Cell Disease?
Prevalence of Sickle Cell Disease
How Do You Inherit Sickle Cell Disease?
Explore More In-Depth Information
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American Society of Hematology
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Centers for Disease Control
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National Institutes of Health
The Problem with Sickled Cells (video)
A Century of Progress
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Sickle Cell Trait Facts
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Know Your Trait Status
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Sickle cell trait info from the CDC
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NCAA Fact Sheet for Student Athletes
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Testing for sickle cell trait and disease
Symptoms and Complications
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Anemia
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Acute Chest Syndrome
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Pain
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Hand-Foot Syndrome
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Splenic Crisis
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Infection
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Stroke
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Vision Loss
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More info from the CDC
Feb. 29, 2020 treatment workshop videos
Bone marrow and stem cell transplants
Medications
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Penicillin
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Hydroxyurea
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Endari
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Adakveo
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Oxbryta
Transfusions
News & Multimedia
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SCDAA-MI Out and About
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News From Around the Community
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Patient & caregiver-focused videos
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Provider-focused sickle cell videos
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News archive
Coronavirus / COVID-19 Info & Resources
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SCDAA sickle cell/COVID-19 guidelines
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Patient
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Provider
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SCD COVID Registry
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Contact info for Drs. Ahmar Zaidi and Michael Callaghan
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Assistance navigating resources
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U of M COVID-19 Pandemic Resource Guide
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Resources for day-to-day living during COVID-19
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Food
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Mental Health
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Internet & Device Access
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Talking with your children about COVID-19
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Education and enrichment
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United Way 2-1-1
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COVID-19 risk assessment
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Meals for children
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COVID-19 cases in Michigan
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SCDAA-MI Protocols
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CDC Recommendations for People at High Risk
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Cheat Codes: Emergency Sickle Cell COVID-19 Podcast
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How to get tested for COVID-19
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COVID-19 symptoms
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Information from Michigan health departments
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What you need to know about handwashing
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Statewide resources and information flyer
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City of Detroit Water Restart Plan
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Coping with Coronavirus Anxiety
We’re working to keep you SAFER
NIH health maintenance for sickle cell
CDC opioid clarification for sickle cell disease
NIH treatment guidelines for sickle cell disease
Know Your Rights – The Joint Commission
Speak Up For Your Rights – The Joint Commission
Ask Your Advocate to Speak Up – The Joint Commission
Passport to Health Toolkit
Tips for trips to ER
Clinical trials
Sickle cell facts and figures
Sickle cell glossary
Understanding medical speak
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One SCD Voice
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Cheat Codes Podcast
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Living with SCD Self-Care Toolkit
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Get Connected Patient Powered Registry
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The Sickle Cell Podcast
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Generation S
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Ways 2 Give
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Why donate?
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Amazon
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Corporate partnerships
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2020 Sickle Cell Matters Walk
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2020 Sickle Cell Matters Walk Host Committee
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Our Donors
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2020 Census information
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Current and recent issues we’re working on
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Advocacy training
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Are you ready to vote? Michigan voter information
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Our advocacy partners
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Do you know who represents you? Find your representative.
SCDAA sickle cell/COVID-19 provider guidelines
SCD COVID Registry
ASH COVID FAQs
SAFE(R) card and accompanying NIH guidelines
NIH and AHRQ ER triage guidelines
NIH Sickle Cell Pain Algorithm
How to conduct a sickle cell assessment (6 min video)
High ER utilization and perceptions of addiction/drug-seeking behavior (3 min video)
About the SAFE(R) Initiative
CDC clarification on opioids for sickle cell disease
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NIH full recommendations
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NIH quick guide to recommendations
ASH pocket guides for acute and non-acute care management
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Management of acute complications of sickle cell
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All pocket guides
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Cardiopulmonary and kidney disease
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Health maintenance and management of chronic complications
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Hydroxyurea and transfusion therapy
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SAFE(R) card
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How to partner
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Provider and patient anecdotes
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CDC opioid guidance for sickle cell
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HHS Asst. Sec’y for health comment
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Office of Minority Health statistic
Resources for provider education
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Improving Emergency Department-Based Care of Sickle Cell Pain
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American College of Emergency Physicians (ACEP) Resources
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Acute and Emergency Department Assessment and Treatment
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Sickle Cell is More Than Pain: Managing Complications
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Helpful Contextual Videos About Sickle Cell Disease
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Ongoing Educational Opportunities
Event Calendar
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Register today
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Set up your team
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Volunteer
Warrior Stroll
Salute to Legacy Warriors
Virtual Summit
Leadership and Key Volunteers
Who to contact
2019 Event Gallery
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Cynthia Coles Circle Luncheon, May 18
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World Sickle Cell Day, June 19
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Sickle Strong Empowerment Circle Balloon Launch, June 19
2019 Sickle Cell Matters Walk
2018 Gallery
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2018 Sickle CELLabration
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World Sickle Cell Day 2018
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2018 Sickle Cell Matters Awareness Walk
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2018 Cynthia Coles Circle Benefit Luncheon
Campaign Awareness Launch
Phone numbers to reach our patient advocate and social work staff throughout the state of Michigan.