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We thank you for your service! Tonya Ashwood-Malone, Data Manager Congratulating Tonya Malone on 30 years of dedicated service to the Sickle Cell Disease Association of America, Michigan Chapter, Inc. We appreciate you.

Since we have announced our Save the date for our 2021 Sickle Cell Matters Awareness Walk, We look forward to your participation! Here are highlights from last year's walk..... Enjoy!!!! I'm a paragraph. Click here to add your own text and edit me. It's easy. The Sickle Cell Matters Virtual Walk program starts at 10 :15 a.m. EST here and on Facebook @SickleCellMichigan! YOUR GUIDE TO THE daY* *Program times are approximate You can still donate to the 2020 Sickle Cell Matters Virtual Walk through September 30th. We appreciate your support! Donate to the cause or a team Click the image to download a PDF version of the day's agenda. 10:15 - WELCOME REMARKS SCDAA-MI CEO & Medical Director, Dr. Wanda Whitten-Shurney Honorary Chair, Deborah Smith-Pollard Honorary C-Chair, Dr. Ahmar Zaidi, "Dr. Z." 10:21 - #SICKLESLIDE Join Dr. Shurney and the staff of the Bottomless Toy Chest in the #SickleSlide 10:24 - WARRIOR RECOGNITIONS Tribute to Fallen Warriors - Those We've Lost 2020 Graduation Open House Celebration Salute to Legacy Warriors - Those 40 & Over 10:37 - MEET OUR SPONSORS Greetings from Medunik USA & What You Should Know About Sickle Cell Anemia Wayne County Community College District Tour Emmaus Life Sciences - About Endari 11:14 - PRODUCTS & SERVICES Pfizer - Functional Fluidics Sick Cells - Versiti - Terumo 11:16 - GIVEAWAYS & AWARDS 1st & 2nd Place Fundraising Teams (as of 9/12) Most Team Members (as of 9/12) T-Shirt/Poster Design Contest Winner Giveaway Winner From All Participants (as of 9/5 11:20 - TIME TO MOVE! Now's the time to move how you choose. Take your walk, do a little yoga, or head out to your ballot box to drop off your election ballot. Be sure to post your photos u sing #SickleCellMattersWalkMI #SickleCellMatters #SickleCellLivesMatter Dr. Wanda Whitten-Shurney Deborah Smith-Pollard Dr. Ahmar Zaidi Thank you for making our 2020 Sickle Cell Matters Virtual Walk a huge success! DONATE NOW Our 2020 Sickle Cell Matters Walk sponsors! Meet the Sponsors

Your gift to the Sickle Cell Disease Association of America - Michigan Chapter helps ensure that counseling, educational, medical, and basic needs services are addressed for people with sickle cell. By supporting our work, you help improve lives. Thank you for your support! donation page Donate Now How much are you donating? * $15 $25 $50 $75 $100 Other First Name Last Name I'd like this donation to remain anonymous Company Street Address City, STATE Zip Email Address Donating in honor of: DONATE Thank you for helping us improve the lives of people with sickle cell!

OUR PARTNERS SCDAA Member Organization As a Member Organization of Sickle Cell Disease Association of America, we are positioned to work with other local organizations and with the National office to execute events, fundraisers, programs, and projects. For more information about our national agency, click here (insert logo and link to website). Our achievements are possible because of the continued commitment of our dedicated staff, Board of Directors, and other volunteers. We also wish to acknowledge the financial support from the state of Michigan Department of Health and Human Services, Federal Health Resource [i]and Services Administration (HRSA), City of Detroit- Planning & Development Department and the many agencies, organizations and individuals which have enabled us to provide free services for our clients. The Cynthia Coles Circle of Friendship Baptist Church has been a steadfast supporter of our organization as well as Community Health Charities. We could not have met the challenges presented by sickle cell conditions without the assistance we have received from the total community. We are deeply grateful for your generous support over the years and we intend to continue to be worthy of it. Our promise is to continue delivering dedicated comprehensive services, with true compassion. CALL TO ACTION If you would like to join us in improving the lives of individuals living with sickle cell disease, please take a moment to send a tax deductible contribution. Thank you!

SCDtranstion support We want to make it easier to find credible, useful information that helps make it a little easier to live with sickle cell. Ideas for content are welcome! CLINICAL TRIALS Research into treatments for sickle cell are at an all-time high. Once a new possibility is discovered, it moves through a series of further studies and approvals that include clinical trials. Without the brave patients who come forward to test new approaches, new treatments couldn't make it to market. Here's a list of NIH-funded trials for sickle cell currently underway. Source: National Institutes of Health SICKLE CELL GLOSSARY A diagnosis of sickle cell comes with its own language. If you're newly-diagnosed, the words can be overwhelming. As research evolves and new discoveries about living with the disease come to light, new terms will be added to conversations. This glossary will serve as both an introduction and a refresher for those who need it. Source: Missouri Dept. of Health & Senior Services UNDERSTANDING MEDICAL SPEAK Do you know what your doctor just said to you? Even if you ask for clarification on site, you might forget a few things before you reach your next destination. Or you may be surfing the internet and come across unfamiliar terms used in your medical care. This dictionary provides definitions in every day language to help you better understand your condition. Source: Medical Library Association NIH - HEALTH MAINTENANCE FOR SCD Click the image for a PDF of the NIH guidelines and recommendations for the health maintenance of people with sickle cell. (Approx. 40 pages) Read and provide a copy to your primary care physician. Click the yellow button to go directly to the full NIH document. Source: National Institutes of Health CDC OPIOID CLARIFICATION FOR SCD In February 2019, the CDC clarified its opioid guidelines in a letter to ASH stating its guidelines were not intended to manage the complexities of sickle cell. The CDC instead refers providers to the NIH guidelines for proper care. Access the full letter. Source: American Society of Hematology NIH - TREATMENT GUIDES FOR SCD Click the image for a PDF of the full NIH guidelines and recommendations for the management of sickle cell disease (161 pages). Click the yellow button to go directly to the full document on the National Institutes of Health (NIH) web site. Source: National Institutes of Health PASSPORT TO HEALTH TOOLKIT Dr. Wanda Whitten-Shurney's Passport to Health Toolkit is a great source of information for maintaining your health. (Join us for an educational program to receive the backpack that goes with it. *While supplies last!) Source: Dr. Wanda Shurney TIPS FOR TRIPS TO ER Emergency room visits are a frequent course of action for people with sickle cell. The CDC provides this handout with suggestions for talking with physicians and navigating the experience. Source: Centers for Disease Control SICKLE CELL FACTS & FIGURES The American Society of Hematology (ASH) provides this clear and thorough handout with facts and figures to help educate yourself and others about the biology and impact of sickle cell disease. Source: American Sociiety of Hematology Looking for a hematologist? Try this zip code-based search . (We do not endorse the physicians listed. Use proper care in researching their expertise.) You can also contact our office for suggestions provided by existing patients/clients. Other informational resources

News media releases and alerts from SCDAA-MI press releases Advisories from SCDAA's Medical and Research Advisory Committee Sickle Cell Disease Association of America Medical and Research Advisory Committee COVID-19 Update “December 23, 2021 – SCDAA MARAC reminds the sickle cell community that the COVID-19 pandemic is having another increase in infections. New variants like omicron are emerging, as is common for RNA viruses, and vaccination rates need to consequently improve. Vaccinations can protect against severe illness. A new mediation might also help as early treatment for infected individuals.” Further details/recommendations on website: https://www.sicklecelldisease.org/2021/12/23/marac-advisory-statement-update-about-covid-19/ MARAC Advisory Statement on Post-secondary and Boarding School Education in the Age of COVID-19 (July 31, 2020) - SHOW THIS TO YOUR SCHOOL ADMINISTRATOR TO HELP THEM HELP YOU. MARAC Advisory Statement for SCD Patients Who are Teachers, Administrators, and Other Support Staff during School Reopening (July 30, 2020) - SHOW THIS TO YOUR EMPLOYER TO HELP THEM HELP YOU SCDAA MARAC Position on 2020 School Reopening (July 27, 2020) - SHOW THIS TO YOUR CHILD’S SCHOOL PRINCIPAL TO HELP THEM HELP YOU MARAC Advisory Statement Regarding SCD Patients during the time of “Reopening” the U.S. Economy (April 30, 2020) Sickle Cell Disease and COVID-19: Provider Advisory: An Outline to Decrease Burden and Minimize Morbidity (May 27, 2020) Health Alert for People with Sickle Cell Disease and their Caregivers (March 17, 2020) - SHOW THIS TO YOUR MEDICAL PROVIDERS TO HELP THEM HELP YOU A Health Note From Dr. Biree Andemariam , SCDAA Chief Medical Officer (March 13, 2020)

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Career Opportunities at SCDAA-MI The Sickle Cell Disease Association of America – Michigan Chapter (SCDAA-MI), offers education, assistance, and advocacy to individuals living with and families affected by sickle cell disease. SCDAAMI provides counseling, support groups, referrals for financial and medical help, and connects students and job seekers with school, college and employment assistance, in addition to raising public awareness and sending children to summer camp each year. The agency also coordinates newborn screening for babies born in Michigan and conducts on-site blood testing to diagnose sickle cell trait and disease. All SCDAA-MI employees play a vital role in achieving our mission to improve the quality of life for people with sickle cell. Please click on the job availability below to join our team! Position Available: Patient Advocate & Community Health Worker - Saginaw/Flint Office Marketing Consultant for SCD License Plate Campaign - RFP The Sickle Cell Disease Association of America - Michigan Chapter is an Equal Opportunity Employer. jobs/ careers

our services For more information: Detroit Main Line: (313) 864-4406 Children's Hospital SC Clinic: (313) 745-5613 Sickle Cell Trait Counseling: (313) 864-4406 School/Job Assistance: (313) 595-0541 Email info@scdaami.org Contact our nearest satellite office: Detroit Area: (313) 613-7327 Benton Harbor/Kalamazoo Area: (304) 404-4229 Grand Rapids/Muskegon Area: (616) 788-9816 Jackson/Lansing Area: (517) 249-9528 Saginaw/Flint Area: (989) 372-0256 SCDAA-MI provides a range of services to individuals with sickle cell and their families. This includes counseling, support groups, referrals for financial and medical help, college and employment assistance, sending children to summer camp each year. The agency also coordinates newborn screening for all babies born in Michigan. WHAT WE DO HERE TO HELP Services We Provide Do you have medical insurance, primary care, a hematologist? Do you need accommodations at school/work? Let us help you manage your life with sickle cell. Read More PARTNER RESOURCES Community Connections We've compiled a handy list of helpful partner resources you can use to help meet basic and emergency needs for yourself and/or your family. Read More CORONAVIRUS / COVID-19 What You Should Know Individuals with sickle cell run a higher risk of complications if they contract COVID-19. Get SCD-specific info and guidelines to help stay safe. Read More

2019 Photo Gallery 2018 Photo Gallery 2021 photo galleries Awareness Campaign Launch This year for World Sickle Cell Day the Sickle Strong Adult Support Group hosted a lantern release to where we all could shine a light for individual living with sickle cell and to honor the memory of the beautiful ones we loss. Please enjoy these highlights! Thank You! (Is your photo/video missing from this collection? If so, email it to us.)