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  • Ways 2Give | -scdaami-

    WAYS TO GIVE Donate online here Host a Facebook fundraiser: Birthdays, anniversaries, holidays, Mondays - any day is a good day to rally your Facebook friends around our cause. Amazon: Give while you shop, through Amazon Smile. By selecting the Sickle Cell Disease Association of America - Michigan Chapter as your charitable recipient, Amazon will donate .5% of every eligible purchase to SCDAA-MI. All you have to do is shop. Amazon handles the rest. Text to give: Text FIVE to 52000. $5 will be added to your phone bill. (Message and data rates apply.) Kroger: Register your Kroger Rewards Card online at Kroger.com/communityrewards Enter SICKLE CELL DISEASE ASSOICATION OF AMERICA MI CHPT or 91452. (Sorry, but that is how it's spelled on that site!) Individual purchases will begin counting towards your organization within 7-10 days of registering the individual rewards cards on-line. Every time you shop for groceries and swipe your card, SCDAA-MI automatically starts earning a rebate. Kroger limits your quarterly household contribution to $300. By check or money order, mail to: SCDAAMI, 18516 James Couzens Fwy, Detroit MI 48235 CORPORATE PARTNERSHIPS Donating to SCDAA-MI benefits the thousands of individuals who depend on our education, advocacy and awareness efforts. It also benefits your corporate responsibility goals. ​ ​ ​ ​ ​ ​ For more information, contact Craig Bradley, Director of Operations & Outreach at 313-864.4406, ext. 111. ​ WHY DONATE? With nearly 3,300 people in Michigan living with sickle cell and approximately 1,700 of those people living in the metro Detroit area, our programs and services impact individuals, their families, and the community at large. Sickle cell affects three times as many people as cystic fibrosis in the U.S., yet receives approximately one-third the funding. Your support helps provide year-round education for physicians, patients and caregivers; appropriate medical care, trait testing campaigns, self-sustainability work, and more. Modern medicine has the capacity to help people with sickle cell thrive. Individuals living with the condition want improved quality of life and it’s our mission to make that happen. ways 2give QUICK ACCESS MENU DONATE FACEBOOK AMAZON KROGER SPONSORSHIPS QUESTIONS?

  • Sponsors | -scdaami-

    Thank You Sponsors

  • Sanguine Research Trial | -scdaami-

    Click Here to Participate

  • SickleCell911 | -scdaami-

    SICKLE CELL 911: FAST ACCESS TO GUIDELINES & BETTER CARE Empowering medical professionals to implement evidence-based sickle cell action. Amplifying the patient's voice in care. " Only about 1 in 4 patients with sickle cell disease receive the standard of care described in current guidelines, and many studies have shown that patients do not receive treatment for their pain as soon as, or in appropriate doses as, other patients." - HHS Office of Minority Health PROVIDER INFO SCDAA HEALTH ALERT - COVID-19 AND SICKLE CELL DISEASE: An Outline to Decrease Burden and Minimize Morbidity PARTNER WITH SAFER COVID REGISTRY ASH COVID FAQs OPIOIDS & SCD NIH GUIDELINES COMPLICATIONS ASH POCKET GUIDES ABOUT SAFE(R) SCD EDUCATION IF A PATIENT GIVES YOU THIS CARD, PLEASE CLICK THE IMAGE FOR NIH GUIDELINES! PLEASE TRIAGE AS ESI 2 PER NIH AND AHRQ "It is not possible to manage pain at triage for patients with renal colic, cancer, or sickle cell crisis. These patients should be triaged as ESI level 2 and rapid placement should be facilitated whenever possible." - AHRQ, Emergency Severity Index (ESI) Implementation Handbook (see page 26) Web site PDF NIH SICKLE CELL PAIN ALGORITHM HOW TO CONDUCT A SICKLE CELL ASSESSMENT These videos from Duke University's School of Nursing demonstrate how to conduct an assessment for a sickle cell patient's vaso-occlusive crisis (6 mins) and a patient with a high number of ED visits who might face perceptions of opioid addiction or drug-seeking behavior (3 mins). ABOUT THE SAFE(R) INITIATIVE SAFE(R) stems from the sad and dangerous reality that many individuals with sickle cell opt to "wait out" an acute episode as long as possible rather than endure a traumatizing trip to the ED where they're likely to be stigmatized and/or undertreated. This treatment time lost equates to eventual organ failure or other tragic complications. We're asking the medical community to partner with us in assuring patients that they'll be SAFE(R) in your facility because you'll adhere to CDC and NIH guidelines in their care. ​ Access/download a compilation of NIH guides specific to SAFE(R). ​ Printable patient SCD911 SAFE(R) Card . ​ Learn more about the SAFE(R) Initiative . CDC CLARIFICATION ON OPIOIDS FOR SCD Read the clarification letter from CDC to ASH online . ​ Read the CDC's statement against misapplication of the guideline here. BACK TO THE TOP NIH EVIDENCE-BASED MANAGEMENT OF SICKLE CELL DISEASE NIH full recommendations Click the image at left for a PDF of the full 161-page NIH recommendations. This link will take you directly to the full document at NIH's site. NIH Quick Guide to Recommendations "The purpose of this Guide to Recommendations is to provide clinicians with a digital resource of the treatment recommendations extracted from the full report. For more information, please refer to the full report. . . ." ​ Click the image at right for a pdf of the 48-page Quick Guide. This link will take you directly to the Quick Guide document at NIH's site. NIH GUIDELINES: ACUTE CARE BREAKOUT For ease-of-access, this section contains a breakout of individual acute complications of sickle cell with links to corresponding PDFs from the Quick Guide and the full recommendations. What does the patient report? Remember, there are no labs that can indicate or confirm a patient's level of pain ! Acute Chest Syndrome: Quick Full ​ Acute Stroke: Quick Full ​ Anemia: Quick Full ​ Fever: Quick Full ​ Hepatobiliary: Quick Full ​ Multi-System Organ Failure: Quick Full ​ Ocular Conditions: Quick Full ​ Priapism: Quick Full ​ Renal Failure: Quick Full ​ Splenic Sequestration: Quick Full ​ Vaso-occlusive crisis/pain episode: Quick Full ​ ASH POCKET GUIDES FOR ACUTE AND NON-ACUTE CARE MANAGEMENT ASH POCKET GUIDE - MANAGEMENT OF ACUTE COMPLICATIONS OF SICKLE CELL Click the image to access a PDF of ASH's Management of Acute Complications of Sickle Cell Disease pocket guide. Presented by ASH in 2014, adapted from the National Heart, Lung, and Blood Institute's Evidence Based Management of Sickle Cell Disease: Expert Panel Report, 2014. (Click here to go directly to ASH's web site for links to all its sickle cell pocket guides.) ACCESS ALL ASH POCKET GUIDES FOR MANAGING SICKLE CELL Click here to go directly to ASH's web site for links to all the sickle cell pocket guides. The following links will take you to individual PDFs for download. Cardiopulmonary and Kidney Disease in Sickle Cell Disease: Screening and Management This pocket guide includes key recommendations from the American Society of Hematology 2019 guidelines for sickle cell disease: cardiopulmonary and kidney disease, available soon in Blood Advances. ​ Health Maintenance and Management of Chronic Complications of Sickle Cell Disease Presented by ASH in 2014, adapted from the National Heart, Lung, and Blood Institute's Evidence Based Management of Sickle Cell Disease: Expert Panel Report, 2014 ​ Hydroxyurea and Transfusion Therapy for the Treatment of Sickle Cell Disease Presented by ASH in 2014, adapted from the National Heart, Lung, and Blood Institute's Evidence Based Management of Sickle Cell Disease: Expert Panel Report, 2014 ​ Download the apps: For iOS For Android Web version of the apps BACK TO THE TOP SOURCES: https://www.minorityhealth.hhs.gov/sicklecell/, https://www.nhlbi.nih.gov/health-topics/evidence-based-management-sickle-cell-disease, https://www.nhlbi.nih.gov/sites/default/files/media/docs/Evd-Bsd_SickleCellDis_Rep2014.pdf, https://www.hematology.org/Clinicians/Guidelines-Quality/Quick-Reference.aspx, https://sickleemergency.duke.edu/educational-resources/videos, https://www.ahrq.gov/sites/default/files/wysiwyg/professionals/systems/hospital/esi/esihandbk.pdf

  • About Us Overview | -scdaami-

    about us The Sickle Cell Disease Association of America - Michigan Chapter has been a leader in the sickle cell community since 1971. We are committed to improving the lives of people with sickle cell by keeping our mission at the center of everything we do. ​ OUR HISTORY SICKLE CELL CENTER Our success all started with the vision of Dr. Charles F. Whitten. His daughter Dr. Wanda Whitten-Shurney continues the work. Read More > OUR IMPACT EVERYBODY COUNTS Numbers, numbers, numbers. But here at SCDAA-MI, every statistic represents a real person we fight for every day. Read More > OUR BOARD LEADERSHIP MATTERS Our board members provide mission and operational oversight with passion, dedication, and expertise. Read More > OUR STAFF 200 YEARS The SCDAA-MI staff brings more than 200 years of experience to its mission of changing the world of sickle cell. Read More >

  • 2021 Gallery | -scdaami-

    2019 Photo Gallery 2018 Photo Gallery 2021 photo galleries Awareness Campaign Launch This year for World Sickle Cell Day the Sickle Strong Adult Support Group hosted a lantern release to where we all could shine a light for individual living with sickle cell and to honor the memory of the beautiful ones we loss. Please enjoy these highlights! ​ Thank You! ​ (Is your photo/video missing from this collection? If so, email it to us.) ​ ​ ​

  • Volunteer | -scdaami-

    volunteer Contact Us Photo Release Client Feedback We have a variety of ways you can help us at SCDAA-MI – even during COVID. Social Media Ambassador – Like, share, re-post and re-tweet from our Facebook, Instagram and Twitter pages to help generate awareness of our work. Help us find and reach out to supporters in groups and on related pages and accounts. Educational sessions - Create lists of current topics and potential speakers, and helping us build our audiences. Advocacy – Reach out to elected officials online and on social media about policy actions effecting the sickle cell community Interested in something else? Let’s work together to find something that fits your commitment and schedule. ​ Just complete the volunteer form to let us know what you're interested in and when you're available. ​ ​ We appreciate everything you do for our cause! ​ Email: info@scdaami.org Phone: (313) 864-4406 Toll free: (800) 842-0973 Fax: (313) 864-9980 Volunteer Application Form Help us make a difference! First Name Last Name Email Phone Address Age A few words about you Please check here if you're under 18 Next

  • Jobs/Careers | -scdaami-

    Career Opportunities at SCDAA-MI The Sickle Cell Disease Association of America – Michigan Chapter (SCDAA-MI), offers education, assistance, and advocacy to individuals living with and families affected by sickle cell disease. SCDAAMI provides counseling, support groups, referrals for financial and medical help, and connects students and job seekers with school, college and employment assistance, in addition to raising public awareness and sending children to summer camp each year. The agency also coordinates newborn screening for babies born in Michigan and conducts on-site blood testing to diagnose sickle cell trait and disease. All SCDAA-MI employees play a vital role in achieving our mission to improve the quality of life for people with sickle cell. Please click on the job availability below to join our team! ​ We currently do not have any open positions available at this time. Please check our website periodically for open positions. ​ ​ ​ The Sickle Cell Disease Association of America - Michigan Chapter is an Equal Opportunity Employer. jobs/ careers

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